17:30:22 ROHAN SAMARAJIVA: 17:30:32 good morning, good evening, good day. 17:30:34 I believe we have people from 17:30:42 multiple time zones. I chair of LIRNEasia 17:30:44 which is the organisation which is 17:30:47 hosting this event. 17:30:49 I also happen to be the lead of the team at 17:30:53 LIRNEasia which has been dealing with disability 17:30:55 issues for the last five or six years. 17:30:58 Thank you for joining us 17:31:00 on this expert forum on 17:31:05 policy relevant research on disability 17:31:07 and ICT's. 17:31:11 Information and computer technologies. 17:31:12 This is the first of a two-day event, 17:31:16 today we will be covering two segments. 17:31:21 One is on learning share research just to 17:31:24 get the ball rolling and the second is on 17:31:27 research gaps and future directions 17:31:29 where our colleague 17:31:31 , Gerald Goggin 17:31:34 , from multiple universities 17:31:38 but NTU at Singapore in the moment 17:31:41 will take the lead on the second half. 17:31:47 Just to get some technical matters out of 17:31:49 the way, we will be recording this 17:31:52 academic discussion 17:31:55 and it will be preserved and made 17:31:57 available 17:31:58 on LIRNEasia on the LIRNEasia website 17:32:03 so that people can look at it at their own 17:32:07 convenience and come back and revisit certain 17:32:09 parts if there is such a need. 17:32:12 We will also 17:32:15 make available 17:32:18 a zoom integrated live captioning feature 17:32:27 to bring new reels time industry-leading 17:32:29 captions so you can seamlessly follow the 17:32:32 discussions throughout both days. We believe 17:32:34 this is part of the approach of accessible 17:32:37 technology that will help 17:32:39 those who are disabled as well as 17:32:42 those who consider themselves not disabled. 17:32:52 To access and enable this feature please 17:32:54 click the closed caption or CC button at the 17:32:58 bottom of the zoom window. 17:33:00 The transcript of the session will also be 17:33:03 made available on the website where you can 17:33:06 look through and search for components as are 17:33:08 relevant to you. Just to give you my job 17:33:12 in the next eight minutes, the remainingg 17:33:16 eight minutes. Is to contextualise what 17:33:18 we are trying to do, set out the objectives and 17:33:22 so on. We have kept these two 17:33:25 sessions tight and the presentation short 17:33:29 , leaving plenty of time for your contributions. 17:33:32 That is really what our objective is, 17:33:34 to get as much information as possible 17:33:39 from the people who have so kindly agreed to 17:33:42 share and give a bit of their time 17:33:45 , in various time zones 17:33:47 at convenient 17:33:48 times. 17:33:56 In these times of zoom fatigue, to take another 17:33:59 zoom call. 17:34:04 So, just to give you an illustration of what 17:34:07 this is. Today's activity will be 17:34:09 about 150 minutes. The first session will 17:34:12 be 60 minutes and the second one will be 90 17:34:15 minutes. In total, 70 minutes of 17:34:18 this is non-presentation. 17:34:19 It is reserved for interactive discussion. 17:34:21 So, we hope 17:34:23 that we will get to hear 17:34:26 from those who are joining us 17:34:29 , in some cases we have never met 17:34:32 in face-to-face or 17:34:34 virtually. 17:34:37 The two days are connected. 17:34:39 LIRNEasia 17:34:40 is a policy 17:34:44 research organisation. 17:34:47 Just to give you a sense of the way that we 17:34:51 look at the world. Our mission is that of 17:34:55 catalysing 17:34:55 policy change through research, to improve 17:34:58 people's lives 17:35:03 in the emerging Asia-Pacific. We work in 17:35:06 more than one country. 17:35:09 Facilitating the use of hard and soft 17:35:11 infrastructures through the use of knowledge, 17:35:14 information and technology. 17:35:15 We don't 17:35:25 actually prioritise theory building, we 17:35:27 don't prioritise academic publication. We 17:35:29 do those things but our priority really is 17:35:32 getting, taking research to the policy arena. 17:35:35 To the decision-makers. 17:35:38 So, you will see that even in this 17:35:41 presentation, where we will be 17:35:44 presenting some of the research that we have 17:35:47 done today in the first 60 minutes and then 17:35:52 Gerald and our colleague to Shankar 17:35:54 Fernando will be talking 17:35:56 about the larger research setting. 17:36:02 Tomorrow, we going more towards policy 17:36:04 implications and tech solutions. 17:36:07 I am not really going to tell you 17:36:10 a nice, sanitised, 17:36:13 modal presentation kind of story 17:36:20 about how we came up with the nice hypothesis 17:36:23 and all the research questions and a 17:36:25 framework and we went into this field. That is 17:36:29 not what happened. 17:36:31 That is not what happens in most cases 17:36:34 but I will tell you what really happened. 17:36:39 What really happened was that 17:36:45 we are a telecom, policy and regulation 17:36:48 focused 17:36:51 organisation. That is started in 2004. 17:36:54 I am a former regulation 17:36:57 regulator. We go work in different 17:37:00 countries dealing with telecom reforms 17:37:02 or these current issues of 17:37:05 intermediary 17:37:10 liability and censorship and things 17:37:12 like that. 17:37:20 Some hard-core policy regulatory stuff, we 17:37:22 work in the face of law and economics, and the 17:37:26 theory will bring to bear is mostly from 17:37:29 those areas. But, back in 2011, one 17:37:31 of my Indian colleagues who was in the industry 17:37:34 and then before that in the regulatory scene, he 17:37:38 said we really have to 17:37:40 stop this person. 17:37:41 This person who meet tomorrow, 17:37:43 but she may be on the scholars well, 17:37:46 but she will be 17:37:47 on the call tomorrow. 17:37:51 She is a lawyer and she has a PhD in music 17:37:58 and she has made incredible contributions 17:38:01 at the ITU and elsewhere 17:38:03 , Marrakesh Convention and so on, 17:38:05 on 17:38:07 policy relevant to 17:38:11 persons with disabilities and she has 17:38:13 always had this interest on technology. 17:38:18 She had come to meet the regulator and she 17:38:21 happened to meet me. 17:38:25 So we talked, we had a colloquial, we brought 17:38:28 her to Sri Lanka and we had a look real. Our 17:38:32 tagline is pro-market, pro-poor. 17:38:34 When smartphones were still being used 17:38:36 only by the rich 17:38:42 at that point in 2011/2012, we could not 17:38:45 quite get a handle on this problem. 17:38:47 By 2016, we were working 17:38:51 , Alani and I come our CEO, we were in Myanmar 17:38:59 , working at the very early stages of telecom 17:39:02 reform as the country was opening up. 17:39:05 Began to see a phenomenal which was 17:39:07 most people directly going into smartphones. 17:39:10 Wow, 17:39:16 this is going to be an interesting case. So, we 17:39:19 put together a multi-component proposal 17:39:21 but there was one component which had to 17:39:24 do with what do we do about people with 17:39:28 disabilities and how can they use this 17:39:30 technology? That was the beginning 17:39:32 in 2015/2016. Before we really got the 17:39:34 research rolling, 17:39:37 we went around talking to all of the disability 17:39:40 organisations, talking to people in government, 17:39:43 talking to the telephone companies, 17:39:44 and then we found there was a huge information 17:39:48 gap. 17:39:48 So from that point, you could say that our 17:39:51 activities really had to do with 17:39:54 covering that information gap. 17:39:59 What is it that decision-makers didn't 17:40:02 know about the needs and requirements with people 17:40:12 persons with disabilities? And what 17:40:13 with the opportunities that we had on the side 17:40:17 of the decision-makers and the policymakers 17:40:19 that the persons with disabilities didn't 17:40:21 know? We have been going on 17:40:23 that, and as you go, you will find out we worked 17:40:27 in Nepal where we prepared policy briefs 17:40:29 on how the government and the courts, all 17:40:32 kinds of people, the police, how they could 17:40:35 respond better. 17:40:39 We did pre-Excel raters, worked with 17:40:43 marketable scalable interesting incredible 17:40:44 innovations 17:40:44 for the disabled in India 17:40:47 without partners who will be talking to you 17:40:50 tomorrow. 17:40:53 We engaged in a social innovation project in 17:40:56 Sri Lanka right now. 17:40:57 So that is the overall structure. 17:41:00 We have not been adequately 17:41:02 informed with regard to theory. 17:41:03 Our objective 17:41:04 is to learn from you 17:41:17 , to see how we can improve what we are 17:41:21 doing because we want to move forward. We have 17:41:24 been at this for about 5/6 years, and our next 17:41:27 stage is looking at livelihoods. Take some 17:41:30 of the work that we were doing with the Future of 17:41:34 Work, remote working, the effect of the 17:41:36 pandemic and we want to see how that can be 17:41:40 merged into the work that we have been doing 17:41:43 in regards to persons with disabilities and 17:41:46 assistive technologies and we want to engage 17:41:48 with you. We are very thankful 17:41:51 that through the bridge builder, Gerald Goggin, 17:41:53 my old friend, we will be able to build a 17:41:57 bridge to the academic community. In all 17:41:59 honesty, we were in informed or uninformed 17:42:02 about the theoretical world in the disability 17:42:04 area. So that is the overall 17:42:07 context. 17:42:07 We will now have presentations 17:42:12 on the qualitative and quantitative research 17:42:14 conducted by LIRNEasia 17:42:15 . 17:42:17 I 17:42:17 sur 17:42:18 u 17:42:21 and THARAKA AMARASINGHE: 17:42:24 h 17:42:24 ar 17:42:24 aka 17:42:25 . 17:42:31 I would achieve statistician who is 17:42:34 responsible for the qualitative research 17:42:35 will take you through. 17:42:37 Remember, we are not giving you the full 17:42:40 works, we have a lot more 17:42:43 . We are just giving you a 17:42:45 taste. 17:42:46 We hope that you will go to the website and 17:42:49 get the actual information that will 17:42:51 interest you. 17:42:56 ISURU SAMARATUNGA: 17:43:04 hopefully you can see the screen. 17:43:27 I am trying to turn on my camera. 17:43:30 ROHAN SAMARAJIVA: 17:43:31 now it is black. 17:43:46 Do you guys want to 17:43:47 flip 17:43:48 ? 17:43:51 No, we are good. 17:43:56 ISURU SAMARATUNGA: 17:43:59 I 17:44:06 I will be taking you through some of the 17:44:09 qualitative findings on persons with disabilities 17:44:11 is that we found in our research projects. 17:44:14 I will be discussing 17:44:17 about how we studied 17:44:20 it and what kind of experiences 17:44:22 . 17:44:24 Just to give you a brief 17:44:28 overview on the qualitative studies 17:44:32 . 17:44:34 We were focused on 17:44:41 (inaudible) 17:44:44 . 17:44:46 Also, we looked at how 17:44:52 technology could help 17:44:57 . Also, we tried to 17:44:59 understand 17:45:00 what kind of barriers they faced 17:45:04 in terms of education, transportation 17:45:09 .. 17:45:10 . 17:45:28 Now you are seeing 17:45:30 the specific locations 17:45:32 that we have studied in those countries put 17:45:35 . 17:45:38 We wanted to study some social economic 17:45:42 resources within the communities and also the 17:45:45 language 17:45:46 but all of those things. So that is why 17:45:50 we selected different locations 17:45:52 in these countries that I just mentioned. 17:46:04 We use the Washington group questionnaire 17:46:07 and other 17:46:12 data collection tools were focus group 17:46:14 discussions, focused and that our country 17:46:17 ethnography 17:46:19 , in-depth interviews 17:46:23 and 17:46:25 key informant interviews. 17:46:30 They were one-on-one interviews which we 17:46:32 conducted 17:46:34 . 17:46:42 Other discussion guides were 17:46:46 semistructured discussion guides and 17:46:47 before participation we 17:46:50 informed consent from all over the participants 17:46:52 . 17:47:05 We had access to Braille, large print for 17:47:07 certain respondents and also use dying language 17:47:10 -- sign language interpreters. 17:47:23 All discussions were conducted in the local 17:47:25 languages and we also use qualified sign 17:47:28 language interpreters for specific groups. 17:47:30 So independent living, 17:47:39 we could identify eight areas 17:47:43 for persons with disabilities. 17:47:52 So how they achieve these activities could 17:47:55 be different from one person to the other. And 17:47:58 also, 17:48:01 depending on the socio economic status, how 17:48:03 they achieved 17:48:04 these things. 17:48:13 One of the things we identified as 17:48:15 independent living was the ability to 17:48:20 care for personal needs, including safety, 17:48:23 common illness, 17:48:28 grooming, hygiene, fitness and all of those 17:48:30 things. And also, prosthetic 17:48:32 devices 17:48:32 , visually impaired respondents said that 17:48:34 their ability to 17:48:36 buy a purchase 17:48:39 of clothes and to wear clothes independently 17:48:42 could also work as 17:48:44 something that 17:48:48 contributed to independent living. 17:48:54 Household management, 17:48:58 period 17:49:02 we saw how they adopted 17:49:07 adapted their households, sometimes 17:49:11 the equipment all the 17:49:15 o 17:49:16 r 17:49:19 the entrances which they have adapted for 17:49:22 their convenience. 17:49:30 Ability to prepare meals independently, 17:49:31 this is really important for everyone. 17:49:36 How to prepare and store food as well as 17:49:40 how do you eat in a public place. 17:49:51 We also asked about other facilities that 17:49:54 they used and how important they were for 17:49:56 them in their independent living. 17:50:00 You might have online banking 17:50:02 and 17:50:09 staff, but an ability to 17:50:11 communicate with those staff 17:50:21 . Engagement in community 17:50:22 activities, but the public life. Road 17:50:24 safety, public transport, 17:50:25 accessibility, finding their way around 17:50:27 , all of those things but then recreational 17:50:30 activities. Individual 17:50:33 or group activities, virtual or outdoor. 17:50:36 Knowledge about 17:50:39 emergency response services and the 17:50:41 evacuation process. Especially when we were 17:50:43 speaking to respondents 17:50:47 that were having a civil war 17:50:50 that was going on for decades, 17:50:52 these things are 17:50:54 important to the respondents. 17:50:56 Then we asked about use of 17:50:59 mobile technology 17:51:01 . Most of them say that 17:51:04 most 17:51:08 of them know mobile technology 17:51:10 well and they can use it with a meaningful 17:51:14 manner. 17:51:16 So let me share 17:51:18 three stories. 17:51:37 From our participants but the main thing we 17:51:40 got from him 17:51:45 , he wants to 17:51:49 discloses disability only when he sees there 17:51:52 is a need for this. Otherwise 17:51:54 he remains without disclosing. And my next 17:51:56 thing is 17:51:57 , inaccessibility canned 17:52:03 lead to other issues. When I say 17:52:05 inaccessibility, can be 17:52:07 the flexibility to accessibility or other 17:52:09 service. 17:52:10 Sometimes they have to spend a lot of money 17:52:15 for health services 17:52:21 which are not accessible. 17:52:22 Sometimes 17:52:34 inaccessible financial services can put them 17:52:36 into data privacy issues and security issues. And 17:52:39 my final thing on the slide is that 17:52:42 inaccessible public transport services can 17:52:44 have an impact to their education as well. 17:52:47 So this particular responded, she was well, 17:52:49 she was not 17:52:52 disabled and she was doing her exams and then 17:52:55 she had an accident 17:52:57 and had to travel to a college far away from her 17:53:01 place. But, due to the lack of 17:53:03 accessible transport services, she could not 17:53:07 continue her studies. 17:53:15 And my last slide, and here we are 17:53:18 realising all of this that 17:53:22 independent living 17:53:25 is a connected concept. 17:53:29 I'm giving example from this research were 17:53:31 I talked to a family 17:53:34 who were based in Sri Lanka. 17:53:46 Both brothers are hearing-impaired and the 17:53:48 mother is a sign language interpreter for 17:53:51 this family. The two brothers, one 17:53:53 , the younger brother is 17:53:59 working for a sugarcane factory and he transports 17:54:03 the goods from 17:54:04 the 17:54:07 farms and factories. When I was talking to 17:54:10 the mother, he was saying to me that they 17:54:15 although they earn money and 17:54:17 have a good life, sometimes they have 17:54:20 problems 17:54:20 getting into certain places. 17:54:24 You have to do simple things 17:54:27 in a hospital to register 17:54:32 . 17:54:36 But it does not guarantee that even if 17:54:39 you have a good income you will have access 17:54:42 access to all of the facilities. So that is 17:54:46 the status of individual living and this is the 17:54:49 end of my presentation. Thank you very much. 17:54:52 ROHAN SAMARATUNGA: 17:54:54 Now we will have 17:54:57 RSHE 17:55:01 arm? 17:55:07 v 17:55:08 Tharaka Amarasinghe 17:55:09 . 17:55:13 THARAKA AMARASINGHE: 17:55:18 I hope you can all see the screen? I'm going to 17:55:22 take you through some of the findings 17:55:25 the two quantitative studies that we did in 17:55:28 Sri Lanka 17:55:28 and Nepal. 17:55:31 I'm quickly going to the methodology 17:55:33 . 17:55:34 We did these two studies in 17:55:36 Chalong and Maple as part of so 17:55:40 Sri Lanka and 17:55:41 Nepal 17:55:44 . For this study, we have 17:55:46 done it 17:55:47 national representative surveys in 23 17:55:49 countries in the global South, 17:55:54 more than 30% of the population read one 17:55:57 thing we noticed during the design stage of the 17:56:00 study is that there is a lack 17:56:03 of up-to-date representative 17:56:04 data. 17:56:08 Initial anchor 17:56:13 Sri Lanka, 17:56:14 reran the study among the 17:56:21 PWD population so we could get 17:56:24 comparable 17:56:26 data. This was a 17:56:29 cost-effective way to conduct this survey for 17:56:32 us. 17:56:33 So the main objective of the 17:56:35 survey was to understand 17:56:37 the ICT access and use 17:56:44 in these countries that we studied. Therefore we 17:56:47 have more than 15 modules to understand the 17:56:50 ICT access and use at household and individual 17:56:53 level. Today, this 17:56:54 presentation, I'm going to briefly show you some 17:56:57 of the findings 17:57:02 . These are highlighted in 17:57:04 red from the slides you can access all of this 17:57:07 information from our website. I have put a 17:57:10 link to the – in the finance line. 17:57:16 First, you can have a look at the numbers 17:57:19 related to the type of disabilities in Sri 17:57:22 Lanka and Nepal. We observe that 17:57:24 different survey organisations use 17:57:26 different types of questions to identify the 17:57:28 persons with disabilities. For 17:57:30 example, 17:57:43 they have used two different questions to 17:57:46 define persons with disabilities here. In 17:57:48 Chenango, we had six questions with three 17:57:51 levels but in Nepal we have only one question 17:57:54 with no level of difficulty paid to buy 17:57:57 the access survey, we use the Washington group 17:58:00 set of questions. We used yes, a lot of 17:58:03 difficulty and cannot do at all to categorise 17:58:06 bird. As you can see, mobility 17:58:08 impairment was the most commonly reported type 17:58:11 of disability for both countries. First we're 17:58:13 going to look at some social oil economic 17:58:17 indications. We can see some 17:58:19 classifications here, or SEC for short, which is 17:58:22 commonly used proxy for household income. 17:58:25 The two groups in these countries, 17:58:27 , 17:58:30 it is very clear that more 17:58:34 Pete? Data is coming from 17:58:36 poorer households. 17:58:45 When it comes to mean income, the 17:58:48 PWD are also poorer. 17:59:03 But they may also have income they are 17:59:06 receiving from their families, not only their 17:59:08 salary. When it comes to 17:59:10 education, they are significantly less 17:59:12 education. For those who did not 17:59:14 have any formal education, 17:59:16 disability itself was the main reason for not 17:59:25 participating in formal schools, followed by 17:59:27 financial reasons but in Nepal, financial reasons 17:59:29 is considerably large competitor anchor. 17:59:32 compared to shall anchor. 17:59:36 Shall Anchor. 17:59:41 . 17:59:47 During this presentation I will use 17:59:51 this gap calculation to show the marginalisation 17:59:55 between population groups. As you can see, 17:59:57 in the equation, this equation measures 17:59:59 disability gaps in employment status 18:00:02 . 18:00:06 What it means is how much less likely a PWD 18:00:09 is being employed compared to a person 18:00:12 from the general population. 18:00:13 We can use the same logic to calculate the 18:00:17 other gaps, such as mobile phone 18:00:19 ownership, internet 18:00:20 use and awareness. 18:00:39 For example, initial anchor, PWD population 18:00:44 72% less likely to be employed compared to the 18:00:47 general population. 18:00:51 There are marginalisation's where 18:00:52 it comes to more basic services or facilities 18:00:55 , like national ID cards 18:01:02 . And PWD's are left 18:01:04 behind in activities such as voting in 18:01:06 elections. 18:01:10 In the survey, we have asked all respondents 18:01:13 about seven types of assistive devices. 18:01:15 These are the actual photos that used in the 18:01:18 show cards in the survey questionnaire. We 18:01:21 observed very low use of assistive devices in 18:01:24 both countries calls. 18:01:26 Only 26% of the Sri Lankan 18:01:29 PWD's and 18% of 18:01:36 Nepalese PWD's had use any assistive devices. 18:01:38 The most common use is to move around. You can 18:01:42 see on the chart on the right hand side. 18:01:45 We asked what is the reason for not having 18:01:49 the device 18:01:50 , the assistive devices of technology of those 18:01:53 who did not use assistive 18:01:55 devices. The majority of the 18:01:57 non-users cited that affordability is the key 18:01:59 barrier for not owning assistive devices. 18:02:04 So, we're going to look at some indicators 18:02:08 on mobile ownership and use 18:02:14 and compare it with the general population. As 18:02:17 you can see in the slide, there is a clear 18:02:20 difference of mobile phone ownership levels 18:02:23 among the PWD population in both rank and Nepal. 18:02:26 When we do the gap calculation, we are 18:02:29 looking at the huge disability gap in 18:02:31 mobile phone ownership which is almost 60% for 18:02:34 both countries. 18:02:37 In the next slide, we are going to look at the 18:02:41 other disparities in respect of mobile phone 18:02:44 ownership. Here we are looking at 18:02:46 gaps in mobile phone ownership. You can see 18:02:49 the gender gap is higher for PWD population. 18:02:52 For example, 18:02:54 in Nepal, a 18:02:59 female PWD is 44% less likely to own a mobile 18:03:03 phone 18:03:04 than a male PWD. We can observe a low 18:03:08 urban rural divide into real anchor 18:03:10 but 18:03:14 in the poll PWD's 18:03:16 is high. 18:03:20 The mobile ownership levels differs by the 18:03:23 type of 18:03:23 disability 18:03:25 of the PWD. 18:03:30 Those who are having difficulty in 18:03:32 communication 18:03:35 , which is in the right most 18:03:37 part on the chart 18:03:42 , other group with the lowest mobile phone 18:03:45 ownership. From those who own 18:03:48 mobile phones, we asked what kind of mobile 18:03:51 phone do have. You can see many PWD's, 18:03:53 using basic phones. 18:03:56 Not surprisingly 18:03:59 , there is a high disability gap 18:04:01 in smartphone ownership 18:04:03 among the mobile phone owners. 18:04:10 We asked why don't you all have a mobile phone 18:04:13 ? 18:04:14 As you can see in the chart, there are 18:04:17 differences in the reasons for not 18:04:22 owning a mobile phone between the gendered PWD 18:04:24 population. 18:04:25 It is the most cited reason 18:04:27 for not 18:04:28 owning a mobile phone. 18:04:34 Next, we are going to look at the Internet 18:04:37 access and use. We ask from the 18:04:40 respondents without any prompt or help do you 18:04:43 know the Internet is? As you can see in the 18:04:46 slide, for sure Lankan is 18:04:48 we observed a high level of knowledge about 18:04:51 the Internet 18:04:53 but the Nepal 18:04:57 the knowledge about the Internet is low 18:04:59 and the gap 18:05:01 is also relatively low. 18:05:08 Then we as from all respondents again, have 18:05:11 you ever use the Internet? This time we 18:05:14 gave some examples 18:05:18 , such as Gmail, Google, Facebook etc., we give 18:05:22 some examples. We observed very low 18:05:24 levels of Internet use 18:05:26 amongst the PWD's in both countries. There is 18:05:29 a huge disability gap 18:05:31 , about more than just 70% for Sri Lanka. 18:05:34 It is only about 18:05:36 10% in both countries use the Internet. 18:05:46 Lack of knowledge about the Internet is most 18:05:48 commonly cited reason for non-Internet uses in 18:05:51 both countries. The second most common 18:05:53 reason for both 18:06:00 population groups. Here, we are looking at 18:06:03 the summary of the gaps with respect to ICT 18:06:06 access and use. For both countries, 18:06:08 disability gap in mobile in use is higher 18:06:16 with the urban/rural gap for Nepal being an 18:06:19 exception. To summarise what we 18:06:20 have discussed in previous 18:06:26 slides, we concluded the PWD's are 18:06:28 marginalised both in terms of ICT access and 18:06:31 use, as well as other basic services such as 18:06:34 education. And even basic things 18:06:36 like 18:06:38 owning a national ID card. I am going to stop. 18:06:43 Please go to our website or go to this 18:06:46 link for more information and data. 18:06:48 Thank you. ROHAN SAMARAJIVA: 18:06:53 O 18:06:53 K 18:06:54 . 18:07:04 You caught up on time. I think let's get to the 18:07:08 discussion, we only have 15 minutes in the 18:07:11 session but there is 55 minutes in the next 18:07:14 session, so if we run out of time, I will 18:07:18 remind people to jot down the question that 18:07:21 you are going to ask and take it to the next 18:07:25 session which will be marinated -- moderated 18:07:27 by Gerald. We will ask someone from 18:07:30 eastern standard time in the United States. 18:07:32 I believe we had the intention of circulating 18:07:35 everybody's profiles so that we don't have to 18:07:38 waste time on that. 18:07:43 If that is done, then we will make sure it 18:07:46 gets into your hands but if it has been done, do 18:07:50 take a look at the backgrounds of the 18:07:53 speakers. Would you like to get 18:07:56 this ball rolling? If you could unmute 18:07:58 please. SPEAKER: Yes 18:08:00 . Thank you so much, good 18:08:02 morning from New York. 18:08:03 See, the power of technology 18:08:11 right, it is global time and space. So how 18:08:14 timely is it that we are talking about the power 18:08:18 of technology to include and simultaneously 18:08:20 exclude. So 18:08:22 thank you for inviting me on such an important 18:08:26 initiative 18:08:27 . I was just listening to 18:08:29 the 18:08:33 presentations that were shared and I was struck 18:08:36 by the numbers that 18:08:38 10% of disabled people 18:08:42 had access to Internet or using 18:08:45 technologies 18:08:46 . 18:08:48 That number 18:08:53 they are always so instant and shocking at 18:08:56 the same time. 18:09:02 So just a little bit about my own. I am a 18:09:06 person with vision impairment and I do 18:09:08 disability research in the global South. I have 18:09:11 done a lot of research on digital divide 18:09:16 and somewhat from a personal perspective to 18:09:19 as to someone who navigates the digital 18:09:21 world with the disability. Today, I 18:09:23 think going to keep my remarks more 18:09:26 connecting with the research that you have 18:09:28 all shared. 18:09:29 So, just quickly, we are in the middle 18:09:32 of the digital revolution. 18:09:35 We are living in the era of 18:09:40 digital transformation, accelerated by COVID. 18:09:49 Motion of communities have changed because of 18:09:51 COVID. Because the physical has 18:09:53 moved the digital. So much of our life we 18:09:57 are living online. Education through zoom, 18:09:59 employment 18:10:03 , a lot of our work from home environments, 18:10:07 during the lockdown, access to health, access 18:10:09 to daily life 18:10:14 and doing basic chores that we were earlier 18:10:17 doing in the physical realm have all been 18:10:20 moved to the digital realm, to a great extent. 18:10:23 And now that we are moving to a post-covert 18:10:26 , although at a different paste 18:10:28 , this digital is to stay. 18:10:31 That is why, when we are living in a digital 18:10:34 economy, 18:10:35 we are living in the digitally governed 18:10:37 society 18:10:38 where digital 18:10:40 is both the means 18:10:42 to inclusion 18:10:43 but also 18:10:46 it becomes also the end 18:10:52 . If you're not able to 18:10:54 participate in that, through digital 18:10:56 platforms than the risk of 18:10:58 inclusion is very high. 18:11:01 I want to reinforce why 18:11:06 we need to talk about digital disability and 18:11:09 Gerald's work 18:11:12 is wonderful. I have read some of your 18:11:14 work Gerald and 18:11:17 , digital disability is a construct has become 18:11:20 even more pertinent now 18:11:22 because of the digital transformation that we 18:11:25 are going through. 18:11:27 Digital transformation is happening in everyday 18:11:29 lives. 18:11:31 It is moving to digital platforms, cloud 18:11:34 computing, Artificial Intelligence 18:11:42 , data application of societies, digitisation 18:11:44 of economies, welfare systems, 18:11:46 to so much of our live is done through online. 18:11:54 The nature of exclusion, we call it 18:11:56 digital disabilities or digital access 18:11:59 is of course there is disability relevant to 18:12:02 it. There is the 18:12:04 dis-embodiment 18:12:06 and the impairment, so for example someone with 18:12:09 a vision impairment 18:12:12 has to operate the digital world with 18:12:15 screen reading technology. Through 18:12:16 use of chores or other kind of screen readers 18:12:20 . 18:12:24 They are of Corso liberating to have the 18:12:27 access to technology is so liberating 18:12:30 because we can participate in what was 18:12:33 exclusionary 18:12:34 . 18:12:37 But then at the same time, 18:12:40 in order to have access 18:12:43 to digital assistive technology, 18:12:45 just to give you the cost of 18:12:49 jaws the screen reader, it is $1000. 18:12:54 Again, I have the privilege of being part 18:12:57 of an academy where 18:12:59 my digital needs 18:13:03 . That is a privilege that 18:13:05 comes from 18:13:06 interlocking systems of privilege 18:13:08 that are not 18:13:09 only 18:13:11 related to economic costs. 18:13:16 I think the presenters really did a great job 18:13:19 between showing 18:13:20 the linkages between digital inclusion and 18:13:23 poverty. I think 18:13:27 there is a twofold process of inclusion or 18:13:30 exclusion. 18:13:30 Digital in itself can have some embodied 18:13:35 gaps for people with disabilities. You know 18:13:38 that our bodied 18:13:39 in a physical impairment 18:13:43 or visual impairment or hearing impairment. 18:13:47 That goes by the nature of the impairment itself. 18:14:04 Then when we look at the model 18:14:04 , 18:14:04 look at digital disability, if you look 18:14:04 at from a social model perspective 18:14:04 , disabled and is caused by 18:14:07 inaccessible environments. And there 18:14:08 are so many reasons for that. 18:14:11 One is that the designers that are 18:14:13 creating these digital platforms 18:14:20 are not very disability competent. They are not 18:14:23 aware of the needs of people with 18:14:26 disabilities, how to design websites, how to 18:14:29 design financial institutions or 18:14:30 each shopping platforms that are 18:14:32 inaccessible 18:14:37 and how to make it. That level of awareness 18:14:40 is very negligent 18:14:44 if we can quantify that. Secondly, the 18:14:47 nature of the barriers beyond 18:14:54 the embodied. It is structural. It is 18:14:57 socio-, economic, it is cultural in nature and 18:14:59 is political in nature. The notion of digital 18:15:02 access we have to look on 18:15:04 and to include multi-led nature of 18:15:07 intersectional gaps. 18:15:08 Or intersectional disadvantages 18:15:09 that play into 18:15:11 all that inform 18:15:12 somebody's 18:15:20 level of inclusion or exclusion. Think is 18:15:23 really important to conceptualise 18:15:24 digital access from an intersectional framework. 18:15:27 Which even the research which was shared 18:15:29 highlights 18:15:30 how these gaps are exacerbated 18:15:35 because of the global South context. Again, 18:15:38 rural context. 18:15:39 If you look at it from gender perspective, cost 18:15:42 perspective. 18:15:50 That accelerates the 18:15:53 exclusion of people disabilities. The 18:15:55 disability in itself is 18:15:57 embodied 18:16:03 barriers, presents embodied barriers for 18:16:05 digital inclusion. Then there is the 18:16:07 intersectional nature of exclusion that the 18:16:09 researchers highlighting and 18:16:23 that disabilities study perspective is now 18:16:25 moving towards looking at disability from a 18:16:27 intersectional lens but that is really important 18:16:30 for us to understand digital divide is also 18:16:33 from an intersectional lens. Multilayered 18:16:35 nature of barriers that also I think, I want to 18:16:38 quickly talk about digitalisation. I think 18:16:40 we're talking about – 18:16:43 ROHAN SAMARATUNGA: If you could give me a 18:16:46 little break in. I do not see any 18:16:49 hands are but if someone would like to 18:16:52 speak please signal to me and will try to find 18:16:56 the time. Otherwise please 18:16:57 continue. VANDANA CHAUDHRY: How 18:16:59 much time do we have? 18:17:04 ROHAN SAMARATUNGA: I think we have a maximum 18:17:07 of another five minutes for this discussion, 18:17:09 there will be more opportunities in the 18:17:12 next round for their 55 minute set about for 18:17:15 discussion and you can continue your thoughts 18:17:18 there. But I do not see anybody 18:17:20 with the hands up yet so please continue. VANDANA 18:17:24 CHAUDHRY: Yes. So what I was saying is 18:17:27 that – how do we conceptualise digital to 18:17:30 digital a multilayered because there are 18:17:32 digital platforms, like smart phones, internet. 18:17:34 Then there's the cloud. So much of our work is 18:17:38 done on the cloud. There's artificial 18:17:40 intelligence. All of this I think we 18:17:43 need to have a disability discussion 18:17:45 embedded all of these 18:17:59 realms of digitalisation that is 18:18:00 going on. And the dangers but of 18:18:03 course digitalisation is great but there is also 18:18:06 danger posed by digitalisation because, 18:18:08 now, governments are now using the state and the 18:18:11 corporate sector is using digitalisation as 18:18:13 a way to enforce austerity, maximise 18:18:15 capitalist profits. We are all becoming part 18:18:18 of the digital 18:18:22 property and being commodified as data. So 18:18:24 the digital technologies also 18:18:26 designed with profit logic. It is really 18:18:28 important to disrupt that and 18:18:31 I think to really enforce 18:18:33 the notion of 18:18:35 social justice or digital justice that 18:18:38 a lot of scholars in 18:18:42 the digital humanities are talking about. This 18:18:45 notion of how do we build digitally just 18:18:48 societies. Which take into account 18:18:51 these intersectional gaps that are there 18:18:53 and for disability, what does digital 18:18:55 justice mean? 18:18:57 First of all, 18:19:01 you will see that our 18:19:03 CRPD article 18:19:05 9 specifically 18:19:07 highlights 18:19:08 inclusion 18:19:10 in 18:19:17 their and article 30 enforces digital access. 18:19:19 I think we do have a global instrument 18:19:22 and if countries are ratifying that, then 18:19:25 that is one mechanism through which we can 18:19:28 design our policies 18:19:29 or our enabling environment. Secondly, 18:19:31 you know, really 18:19:33 it is about bridging the digital and 18:19:36 intersectional gap. And I think, how do we 18:19:39 ensure 18:19:39 digital access where there are large groups 18:19:42 in the 18:19:43 local South where access to basic literacy 18:19:46 , if people are not able to read and 18:19:51 write, how do we expect them to use digital 18:19:54 technologies which are of course, you know, 18:19:57 based on literacy 18:19:58 or capital. Like, you need to have a 18:20:01 certain level 18:20:02 of educational capital birds I think it also 18:20:05 goes back to bridging those kind of 18:20:07 deep-rooted inequalities or 18:20:08 inequities. 18:20:12 Right? So that is very 18:20:13 important. And then really 18:20:15 important is to take the feedback. How disabled 18:20:18 people can be 18:20:20 equal actors and stakeholders in designing 18:20:25 of these technologies in the rollout of these 18:20:28 technologies. And I think that is 18:20:30 where one major Is. You know, there is so 18:20:33 much of a gap in the user end of the 18:20:37 technology and the manufacturing end. I 18:20:39 think if we have more 18:20:41 disabled people in the table, then that would 18:20:44 really inform 18:20:47 digital access 18:20:50 . If users can provide the 18:20:52 feedback 18:20:54 . But then again, there is 18:20:57 – you know, truly important to have 18:20:59 voices of disabled people 18:21:01 to talk about how 18:21:02 digital access 18:21:04 , how digital 18:21:08 platforms can be made accessible. 18:21:19 And I'm reading the thing about the chat and 18:21:22 I think that literacy is important, but of course 18:21:26 digital also helps us to 18:21:27 – a very good point being raised here. To 18:21:30 bridge the literacy gaps because we have things 18:21:33 like voice-over whereby you can dictate in you 18:21:36 don't – you know, that does help us to bridge 18:21:40 those gaps. It is about harnessing 18:21:42 Bradford making sure how to make it 18:21:45 insurable 18:21:45 , accessible. 18:21:48 and the most expensive way possible 18:21:53 . 18:21:55 I think I just want to 18:22:00 – I want us to think about the range of 18:22:04 digital developments and how we can centre 18:22:06 disability 18:22:07 in all of these debates around 18:22:12 data privacy and how when we build biometric 18:22:15 technologies, 18:22:19 disability barriers 18:22:21 girl being experienced by unit 18:22:30 users there. So think it's important 18:22:32 to centre this ability within the broader 18:22:35 discourse of this to socialise a. 18:22:40 digitalisation. I'm glad that this 18:22:42 platform is addressing that because of the 18:22:44 global South context, when there was so much 18:22:47 happening in terms of research and such, I 18:22:50 think this is very useful. 18:22:54 I want to kind of reinforce that really 18:22:57 much more of this. So thank you so much for 18:23:01 undertaking this work and organising this 18:23:03 work. Yeah. ROHAN SAMARATUNGA: 18:23:04 Thank you very much. I think we will move on 18:23:08 to the 18:23:09 summit, the concluding comments of the section 18:23:11 from 18:23:12 Gerard Goggin 18:23:14 . 18:23:19 I think that Doctor 18:23:22 Vandana Chaudhry brought up issues of 18:23:26 intersection to which we all believed to be 18:23:29 important. Except as a policy 18:23:31 person, I have had some difficulty 18:23:33 in translating intersection 18:23:34 claims 18:23:40 or intersection and findings into the policy 18:23:42 realm. But that is something 18:23:44 that I hope we will be able to look at. Of 18:23:48 course there was the issue of the profit 18:23:51 logic that she brought up, which I hope we will 18:23:55 also get into. Because one of the 18:23:57 things were very interested in 18:23:59 in the Indian activity was that there were 18:24:02 companies that were actually going to make 18:24:05 money out of this. They were using India, 18:24:08 where there was a massive number, 18:24:10 scalability, and doing it independently of 18:24:12 subsidies. Whether that is a bad 18:24:14 thing or a good thing, I think is something that 18:24:18 we should discuss bread so Gerard, it is all 18:24:21 yours. The next 20 minutes or 18:24:23 so. GERARD GOGGIN: I might 18:24:25 make it shorter than that so maybe other 18:24:28 people can add their voices as well. But that 18:24:31 was a fabulous session. I'm sure that, Doctor 18:24:34 Vandana Chaudhry you had fantastic comments only 18:24:37 covered so many important issues and put 18:24:39 them on the radar for us. I'm really 18:24:42 intrigued, maybe first just to reflect or a 18:24:45 little bit of what you saw Tharaka Amarasinghe 18:24:48 presenting. 18:24:51 As he said, Rowan, it is really a small part 18:24:55 of the engagement 18:25:00 over the past few years and I think it is really 18:25:03 especially interesting. I think it really does 18:25:06 an incredibly important service of bringing 18:25:10 new, fresh research, very engaged research 18:25:12 and collaboration with different 18:25:18 disability organisations as part of 18:25:20 the movement, a range of other people, and 18:25:23 filling in a lot of gaps 18:25:25 . I mean, I'm really/in 18:25:27 just listening to some of the importance of the 18:25:30 work that is being done and presented. So I 18:25:33 mean there are many things to pick up but 18:25:37 I think the independent living as a connected 18:25:40 concept, I really liked. 18:25:42 It's really interesting in that piece of work, 18:25:45 taking independent living from the US 18:25:47 context where it in some ways had 18:25:50 a kind of unfurling and 18:25:53 beginnings in some ways and looking at how it 18:25:56 has some flexibility 18:26:01 . And through the 18:26:02 qualitative work, it is incredibly important I 18:26:05 think to bring out those dimensions that are 18:26:08 often missing about this. And I think that I 18:26:11 just found it incredibly important. Tharaka 18:26:13 Amarasinghe also had to summarise and give us a 18:26:16 flavour of 18:26:18 (unknown term) 18:26:20 . 18:26:28 If I may, the kind of shock of the numbers as 18:26:32 you are saying, Vandana Chaudhry, kind of hits 18:26:35 you. I thought that was 18:26:37 really impressive. I think talking about 18:26:39 the disability as mnemonic devices really 18:26:41 helpful 18:26:42 and talking about some of the 18:26:48 technology gaps is really striking for that 18:26:51 is an important piece of the work to put obsolete 18:26:54 as part of a global effort as I understand 18:26:58 the last few years, the after 18:27:00 effects unit. The age of 18:27:03 (inaudible) 18:27:08 and now digitalisation again, convergence 18:27:10 again, what is this. 18:27:13 Particularly looking at some of the fine details 18:27:16 of that is so important to understand and across 18:27:19 different groups 18:27:20 , to pick up those kind of intersection and 18:27:23 eccentric them up as you were saying Rowan, to 18:27:27 sort of speak to 18:27:28 people in policy as well. What are the 18:27:31 indications of this, what 18:27:33 are the resources that people have gotten their 18:27:36 lives in particular contexts. I think it is 18:27:39 incredibly important. And some of that, 18:27:41 hearing about 18:27:43 the huge disability gap in mobile phone 18:27:45 ownership, I know we have had now about 20 18:27:48 years of mobile phones being seedn 18:27:53 as totemic or something that would solve the 18:27:55 problem of poverty of the gadget by which we 18:27:59 kind of (inaudible) 18:28:00 but also for that whole range of people across 18:28:03 the world with the advent of P. 18:28:05 prepaid mobiles, phones that still course people 18:28:08 are lot 18:28:20 and the affordability issue is really key, 18:28:22 which comes about in the research but we have 18:28:26 some massive gaps in their mobile phone 18:28:28 ownership? Come through really 18:28:30 clearly here. And then the gentry of 18:28:32 that, right? If we have got the gap 18:28:35 for people with disabilities, women are 18:28:37 45% less likely to own a phone than their male 18:28:41 counterparts which is really significant and I 18:28:43 think low levels of internet use which I 18:28:46 found quite shocking, having some sense that 18:28:49 would be the case, right? But getting those 18:28:52 levels of only 10% if I follow that, that is 18:28:55 really the – the biggest disability As the 18:28:58 internet predator seems to fly in the 18:29:01 is the internet as it seems to fly in the face 18:29:05 of (inaudible). That's incredibly 18:29:06 significant. 18:29:09 Vandana Chaudhry I can do the 18:29:11 same 18:29:12 justice to the range of things that 18:29:27 you covered. 18:29:29 Often in ways that 18:29:33 inclusion and accessibility has been 18:29:35 approached, I think my colleague might 18:29:37 cover that tomorrow 18:29:43 , 18:29:48 which people might necessarily not 18:29:50 understand or even people working in 18:29:52 inclusion might not. I think another big 18:29:54 theme that you're picking up as about the 18:29:57 digitalisation 18:29:58 and that actually this is really crucial. I 18:30:01 think observation was that 18:30:03 from say a global South perspective, 18:30:05 perhaps many people 18:30:06 living 18:30:11 in many parts of the world and not figuring 18:30:14 into the discussion of digitisation that is 18:30:16 being done to them 18:30:18 , in many ways. And even more so in the 18:30:22 last couple of years. But that is really 18:30:24 crucial. Working across a broad 18:30:26 agenda is important as well. 18:30:36 ROHAN SAMARAJIVA: 18:30:41 you have the next lot anyway because you are 18:30:44 supposed to set the stage for looking at 18:30:47 research gaps. So whether we take a 18:30:50 little break and then let you continue. I just 18:30:53 want to emphasise to everybody that 18:30:55 particularly the quantitative surveys 18:30:57 were very expensive and we are very grateful to 18:31:00 IDL C for funding the entire 18:31:02 access initiative. We supplemented at 18:31:04 various points so there is 18:31:07 food foundation money that went into doing 18:31:10 some of the supplemental work 18:31:12 in Nepal and so on and so forth. 18:31:15 Unfortunately, the problem with the 18:31:17 costless of these things 18:31:19 is that these are one-shot deals. 18:31:21 You do them and then 18:31:23 we cannot repeat them for a number of years. 18:31:30 Just to alert you that IDL C has also funded 18:31:33 post COVID, how people behave after COVID 18:31:39 , I was asking people whether we have any 18:31:43 disability specific questions in their but 18:31:45 unfortunately we did not get that. I think we 18:31:48 have a comment from Edgar 18:31:51 . I hope he will speak in 18:31:53 the next few minutes. 18:31:57 Just to provide that overall context of who 18:32:00 has helped us to get this work done. I think 18:32:04 we also mentioned 18:32:05 Swedish S IDA and all of these people who 18:32:08 contributed to the big after access research 18:32:10 project. 18:32:11 The second session 18:32:17 is research gaps and future directions. Here 18:32:19 what we would like to do is to have 18:32:23 Gerald Goggin and Dilshan Fernando 18:32:25 speak briefly at the beginning. 18:32:27 15 minutes for Gerald 18:32:30 and 10 minutes for 18:32:31 Dils 18:32:32 han 18:32:38 and then we have 55 minutes for open 18:32:41 discussion which will be moderated by Gerald. 18:32:44 I unfortunately have to step out a little bit 18:32:47 before that. 18:32:50 Gerald, you can continue, say what you 18:32:52 are saying, which I rudely interrupted. 18:32:55 GERALD GOGGIN: 18:32:56 O 18:32:56 n 18:33:00 a roll perhaps. Just let me share the 18:33:03 screen. 18:33:06 I think what I'm aiming to do is maybe a series 18:33:10 of provocations might make it sound a bit too 18:33:13 fancy but let me just try and talk about, just 18:33:17 ready to pull a few things out them a debate 18:33:20 may be wrong and other things. Let me briefly 18:33:24 to say that I had the pleasure of meeting 18:33:30 ROHAN SAMARAJIVA: years ago, perhaps in the 90s 18:33:33 around telecommunications 18:33:34 policy when I worked for an NGO working on 18:33:37 consumer issues. That is how I got 18:33:39 engaged, particular with colleagues from the 18:33:42 death movement, disability movement and 18:33:44 started to learn more about disability 18:33:46 accessibility. I have always had an 18:33:48 interest 18:33:50 in the role of civil society and NGOs doing 18:33:53 research and leading that research and that 18:33:56 being pretty important, before I moved into 18:33:58 academia and lost the plot a little bit. Let 18:34:02 me make some observation about what research is 18:34:05 needed and let's just dive in. 18:34:08 The quantitative data is really crucial. I'm 18:34:10 often struck by the lack of it. 18:34:14 Maybe that is the case, pointing out that it is 18:34:18 expensive. That is fair enough. 18:34:19 But, I think in some ways, despite the 18:34:22 efforts in the last 10 years, 18:34:25 it hasn't developed enough, that there is 18:34:27 opportunities of regulators, 18:34:28 national statistical agencies gathering things 18:34:31 or researchers in different settings doing 18:34:33 it. 18:34:38 I think the full range of locations is what we 18:34:42 are missing across the whole international 18:34:44 scene. 18:34:50 We lack good data on basic things, access, 18:34:53 use, connectivity, context. I think that 18:34:55 piece of research that we have just heard is 18:34:58 great 18:35:01 because it starts to unpick that. If there 18:35:04 was more of that, that would be super. And I 18:35:08 think to find great data is really crucial. 18:35:10 That was evident looking at affordability 18:35:13 issues around telecommunications along 18:35:14 while ago but more so now with the 18:35:17 technologies. The second, and I think 18:35:20 this may sound a bit sort of obvious is the 18:35:23 qualitative ethnographic data. Not all 18:35:25 qualitative data is ethnographic but I think 18:35:27 , colleagues and I have talked about big while 18:35:30 , qualitative dative 18:35:32 . 18:35:35 The idea that these different slices 18:35:43 , the texture of peoples lives use of technology 18:35:46 is really critical or how parts of the system 18:35:50 work, 18:35:55 whether that infrastructure, 18:35:56 location. I love reading the 18:35:58 reports because of some of the maps, the 18:36:01 locations remind me of the great work 18:36:03 that Jack Tew did about Shen Zen and working 18:36:06 class I cities in China which has all of the maps 18:36:11 and the geography. These maps are doing the 18:36:13 participation collaboration which is 18:36:15 crucial. 18:36:21 Around the issues, particularly around the 18:36:23 dynamics, the complexity and the intertextuality 18:36:26 of the quality of the data is really 18:36:29 important. I think we need research 18:36:31 of the crossover and disability rights. There 18:36:33 is a long 18:36:36 work on communication rights, there's work on 18:36:39 digital rights which you referred to in 18:36:41 the age where many of us were engaged with. 18:36:45 Which traditional work 18:36:49 by think some of the complexity of the work 18:36:52 on disability rights and the reworking of it now 18:36:55 which is going on from the ground up is 18:36:59 missing. That connection is not 18:37:01 there where it could be. It is the prompts and 18:37:04 the clauses in the convention. I think we 18:37:07 could do well just to spend a lot of time 18:37:11 putting that together and then it is a 18:37:14 framework for us to advance. So, research on 18:37:17 policy, so I am in part of an organisation 18:37:20 in the academic world called the International 18:37:22 Association 18:37:28 of communication research, as she was set 18:37:30 up by UNESCO in the late 50s. So we have a global 18:37:34 media policy group. 18:37:37 There is good work on policy and understanding 18:37:40 but it is not brought together. It is not 18:37:43 critically there. 18:37:49 We don't necessarily have the full picture. I 18:37:52 have been working in it on and off for a while. 18:37:56 I feel like we don't have the full picture. I 18:37:59 feel like that is very important. It is 18:38:02 important in different settings, not just in 18:38:05 many of the studies about the US, the UK, 18:38:08 Australia, but what about a bunch of other 18:38:11 countries. How do we understand 18:38:13 that we don't understand these things? There are 18:38:16 other reasons, we don't understand what that 18:38:18 difference is between assistive technology, in 18:38:20 terms of more specialised technology, 18:38:22 and mainstream technology. Think of the 18:38:24 mobile phone. I think one of the other 18:38:27 complexities seas is inclusive technology 18:38:29 goes across different domains. It is important 18:38:32 in education in schools. If people are able to 18:38:35 get to schools for education, go on through 18:38:38 the system to get 18:38:39 literacy and so on, there is technology 18:38:42 there, there is technology in work, if 18:38:44 people are active in the workplace and other 18:38:47 sectors but in disability and social 18:38:49 care, 18:38:51 how do they fit together? That is really 18:38:53 crucial when you look at what is going on around 18:38:57 disability, social support around the world 18:38:59 and the use of the technologies as I think 18:39:02 was pointed out in terms of government allergy 18:39:05 in the administration and the politics but it 18:39:08 is also the care, the digital economies of 18:39:11 caring. Had we put this together? 18:39:13 And then across this how do we think about 18:39:17 delivering human rights across these issues and 18:39:19 all other areas of policy. 18:39:21 OK, allied to this is the research on 18:39:24 political economy, 18:39:25 an economy in other respects in market and 18:39:28 business models. 18:39:31 I feel like we still know relatively little 18:39:34 about this. And yet, this is really 18:39:36 crucial, particularly with the tagline and the 18:39:39 filter 18:39:46 of pro-poor but pro-market, so what 18:39:49 others markets? As engage with some 18:39:51 fantastic Canadian consortium 15 years ago 18:39:53 trying to think through these questions. What is 18:39:56 the markets and technology, they change 18:39:58 but how do we make it available to talk, be to 18:40:02 give it to governments and regulators as well 18:40:05 as brought into debate. If we are thinking out 18:40:08 in other settings about what other kind of 18:40:11 economies, political economies of AI, 18:40:26 there is a great book recently about Kate 18:40:29 Crawford and other people have written 18:40:31 about this. What does it look like 18:40:34 in relation to disability. I think this 18:40:36 is critical. I just want to give a 18:40:39 couple more, Innovation, there's a lot of talk 18:40:42 about innovation. It is a bit site Steve, 18:40:45 it has been fashionable for a while. And it is 18:40:48 incredibly important. There is all this great 18:40:51 work on design now and work on incubators, I 18:40:54 notice, the group that you had really 18:40:57 interesting for full work around incubation. 18:40:59 So I think here, I just popped your quote in 18:41:02 here about the stakeholders and equal 18:41:05 actors. I just feel like what is 18:41:07 this big picture? What are these 18:41:09 innovation systems. Every talking about this 18:41:12 is what we need in this is how the innovation 18:41:15 works, a lot of people want to say they're 18:41:57 these people, disability people in the movement 18:41:58 , engineers, 18:42:07 on things like digital TV standards. I know we 18:42:11 have got people here the form who do that work. 18:42:15 Sometimes thankless work and opulence 18:42:17 happens at international levels. We have got 18:42:19 people here from, the 18:42:31 G3 ICT people, I stop, have been at this as 18:42:34 well. I think it's crucial to 18:42:37 be there as early as possible in those 18:42:40 conversations about emerging technology 18:42:41 because that is where the centring can and 18:42:44 should happen. Even at the stage where 18:42:46 it is contesting some of the rhetoric of what 18:42:50 gets brought to the table. Otherwise, it is 18:42:52 in the margins from early on and exclusions 18:42:55 don't get contested. Disability inclusion 18:42:57 economies, this is an important topic as well 18:43:00 people are now starting to work on. You see the 18:43:04 emerging work about digital platforms. In 18:43:06 the gig economy, you see, inside Singapore 18:43:09 there is something grabbed which is now 18:43:11 contesting with logic, the Indonesian right 18:43:13 hailing and food delivery giant. They 18:43:16 really see people with disabilities is critical 18:43:18 to this. 18:43:20 We have a colleague in the US was doing this, 18:43:23 the picture is quite variegated as you might 18:43:26 expect. There's also the use of 18:43:28 the parity, what is been called debility, the 18:43:31 politics that go on in that. 18:43:34 This is area but it is really important in 18:43:37 terms of the prospects for employment and 18:43:40 livelihood 18:43:47 so is really interested to hear this. I think 18:43:51 there is other questions about the quality of 18:43:54 connectivity around digital platforms and 18:43:56 digital economies and the issues of 18:43:58 citizenship, right? There's a cost not only 18:44:00 of the disconnection but of the compulsory 18:44:03 connection that Nicole Drew have done work on 18:44:06 darter colonialism and talks about those type 18:44:08 of things as well. That is it, hopefully 18:44:11 didn't come outside of my work too long but I 18:44:15 tried to hit a few key things, might be 18:44:19 top level but things I think are important 18:44:22 about what research is needed. ROHAN SAMARAJIVA: 18:44:35 I think that been an excellent start for I 18:44:39 was taking notes. As it said at the 18:44:42 beginning we don't necessarily have to take 18:44:44 notes. We will have the 18:44:46 transcript and the material will be 18:44:48 searchable. We wanted it to be 18:44:51 accessible to persons through disabilities and 18:44:53 I think we're helping out the others as well. 18:44:56 Now I would like to invite Dilshan Fernando 18:44:59 who is coming in from the University of wealth 18:45:02 in Canada. Again, an early ratio. 18:45:04 riser. Dilshan will have 10 18:45:06 minutes which 18:45:08 he has also done some writing. 18:45:35 I can see but I cannot hear you. So maybe 18:45:38 somebody can get you on the screen. 18:45:50 DILSHAN FERNANDO: OK, thank you for the 18:45:53 opportunity. I would like to reflect 18:45:55 on some of the opportunities that 18:45:57 LIRNEasia has given through its programme 18:45:59 put a lot has been said already but I wanted to 18:46:03 stalk through some of the concepts that were 18:46:06 used in this research and how it evolved. 18:46:09 In this presentation, my objective is to 18:46:11 reflect on what disability means in the 18:46:14 global South, what are some of the differences 18:46:17 appeared. Also in the context of 18:46:19 the UN Convention. 18:46:26 How LIRNEasia conducted its research and what 18:46:29 concepts were used but how it has changed and 18:46:32 where we are right now. So, it is sometimes 18:46:35 striking when you read most of the research 18:46:38 papers on this ability. They start with the tape 18:46:41 statement: 18:46:48 80% of people living with disabilities live 18:46:51 in developing countries paid we don't go deeper 18:46:54 into it, but maybe we assume that most of the 18:46:57 poor people in developing countries so 18:46:59 assumed has to be connection. But the 18:47:02 first observation it seems to present is that 18:47:05 it is 1/3 were third 18:47:07 world 18:47:11 problem, not because of simply just privilege 18:47:13 but – any debate about 18:47:17 this starts with a robust 18:47:19 development 18:47:20 (inaudible). 18:47:28 But here the pro 18:47:34 (inaudible) and policy defines what disability 18:47:36 means bit however, when we did 18:47:39 see, for example in very 18:47:43 poor countries like Myanmar, it is very 18:47:45 striking that even poor disabled people sometimes 18:47:48 people who are much younger 18:47:52 of course, 18:47:55 spoke about digital technologies in an 18:48:00 positive way. It was not very grim. The 18:48:03 ICT solutions had a lot of promise with 18:48:06 . 18:48:12 We saw that blind people are very reliant 18:48:15 on their phones and use the mobile phone as an 18:48:19 assistive technology. But there are also 18:48:21 doubts as well. That is why I think 18:48:28 these places are good examples to understand 18:48:30 disability in the global South. This is the 18:48:33 ratification of the UN Convention, it is a wary 18:48:37 very ratified 18:48:39 (inaudible). 18:48:41 Recently was said that the north-south 18:48:44 divide 18:48:54 is much less but the disability Is much more. 18:48:57 For example, 73% of the people in India with 18:49:00 disabilities do not work. So there are 18:49:03 significant gaps as well. So to move forward, 18:49:06 LIRNEasia as 18:49:07 mentioned in the beginning 18:49:10 , it saw this ability a major 18:49:12 social problem that 18:49:17 can prevent people from participating in 18:49:19 society. The two questions that 18:49:22 emerged based on that were, what can be 18:49:25 considered as a disability? And how 18:49:27 to operationalise participation in society? 18:49:33 The first concern were 18:49:35 functional limitations, 18:49:38 which changed. 18:49:47 Initially we looked only at public space 18:49:50 accessibility in terms of access ability to 18:49:53 buses, roads, pavements or government buildings 18:49:55 put in a transition to the study of 18:49:58 accessibility of the home. How to get 18:50:05 out of bed, how to shower alone, how to do 18:50:09 laundry alone. These types of personal 18:50:11 space actors abilities which were also 18:50:13 considered as functionary. And then 18:50:15 the genome domain of work. It looked into all 18:50:19 sorts of domains. And then ultimately the 18:50:21 goal was to understand what a robust 18:50:24 informational implementation policy 18:50:25 can do to build these 18:50:35 and bridge the gap. Personally I think it 18:50:38 was promising, especially when you talk 18:50:40 to some of the younger people with 18:50:43 disabilities. Even in poor countries. 18:50:45 There were using mobile phones sometimes doing 18:50:47 games, so a promising thing. 18:50:53 Delving into some of the concepts, we know 18:50:56 that categorisation has a troubled history. 18:50:58 Categorising people was used often as a (unknown 18:51:01 term) thing. But in research we have 18:51:03 to sort of come up with certain metrics to 18:51:07 operationalise 18:51:07 . 18:51:09 At LIRNEasia we used 18:51:11 physical or visual 18:51:13 disability as a categorisation 18:51:15 and later we also 18:51:19 looked at the categorisation in terms 18:51:21 of activity 18:51:22 . Basic activities of basic 18:51:26 daily life. 18:51:28 Instrument activities of daily life. 18:51:33 So you see the focus shifting from the body 18:51:36 to the functionary to the activity. 18:51:40 Alternatively you also see the environment, the 18:51:42 excess of the environment 18:51:43 as an alternative site. 18:51:45 Again, the shift from the body 18:51:51 to understanding the environment. That shift. 18:51:56 A release. 18:52:00 s 18:52:02 already spoken, 18:52:04 making stuff University 18:52:06 as opposed to mere accommodations. 18:52:18 I was shocked to read that identity 18:52:20 emerged as 18:52:23 another, once a categorisation but an 18:52:25 important consideration 18:52:28 that was not given much attention in LIRNEasia 18:52:31 and 18:52:31 this ability research in the global south read 18:52:34 how deaf people always look into the own 18:52:45 deaf communities. I in another deaf person 18:52:48 to develop certain skills. That kind of 18:52:50 death development. 18:52:57 What it means to be a 18:53:00 disability 18:53:04 disabled 18:53:07 , that kind of emerges. What it means to 18:53:10 participate in society a tricky question. 18:53:18 Some of the wrong ways of doing it 18:53:21 are in Sri Lanka 18:53:26 as well, what they call special schools. 18:53:29 Sometimes people think special schools are a 18:53:31 good thing, but it is a segregation 18:53:34 credit is not inclusionary to separate 18:53:36 the main screen school and 18:53:38 a segregated school. 18:53:43 That is not inclusion, although that may be 18:53:45 increasing participation in school. 18:53:49 So inclusive education means you can integrate 18:53:52 students together 18:53:52 in one school. These considerations. 18:53:54 And then in terms of 18:53:58 employment, we have the concept of supported 18:54:01 employment and 18:54:04 the employer having a partnership and then 18:54:06 working it out. These are 18:54:08 open for what can be done in the global South 18:54:12 open for discussion. 18:54:18 Healthcare and what it means to have financial 18:54:21 accessibility and stuff like that. 18:54:23 I'm just moving fast in order to be on time. 18:54:26 Again, accessibility 18:54:30 of the environment is key for disability 18:54:33 inclusion means not just digital space but also 18:54:36 the analogue space and the directions between 18:54:39 them. And we have seen in the 18:54:41 last decade there has been an increase in 18:54:44 universal design of ICT and that has been 18:54:47 (inaudible) for disability inclusion as 18:54:49 a cheaper form of technology 18:54:51 that has had significant use by 18:54:53 people. And 18:54:58 I think 18:55:04 (inaudible) is parties 18:55:07 and interaction between 18:55:10 (unknown term). It is not very 18:55:15 crude way of getting technology to somehow 18:55:17 get that is able person and a very abstract way 18:55:21 to 18:55:22 – so it participates in an ecosystem 18:55:24 . 18:55:31 One of the most controversial 18:55:34 concept that was used 18:55:36 is 18:55:38 independent living, it has been critiqued 18:55:40 heavily. 18:55:41 Critical disability scholars would point out 18:55:44 that 18:55:48 human life is interdependent, not 18:55:50 independent. Even a normal, 18:55:52 nondisabled person, is interdependent as we all 18:55:54 are. The same time in Korea, 18:55:57 England, 18:56:00 Japan, the independent living movement, which 18:56:02 was a disability rights movement, and in England 18:56:05 there was her 18:56:06 independent life fund which was a welfare fund 18:56:09 that went in the white 18:56:11 -- right direction. 18:56:18 Maybe going forward 18:56:22 , concepts like well-being, welfare, 18:56:24 these are future 18:56:26 ways that we can think about 18:56:31 capturing the holistic idea of what it means to 18:56:34 be enabled. 18:56:37 I guess my time is up so just to summarise. 18:56:42 Our guiding hypothesis I think was that 18:56:47 ICT -related technologies and 18:56:48 policies could positively influence 18:56:50 disabling barriers 18:56:53 to generate positive outcome in independent 18:56:55 life of the 18:56:58 Wali Pitt. Somehow allow people 18:57:00 with disability a chance of life. 18:57:02 Especially in the absence of 18:57:11 – not substituting but 18:57:14 (inaudible) to the lack of resources. 18:57:18 Mobile phone use, internet access is 18:57:21 significant 18:57:22 . I wasn't sure how age 18:57:24 was related, but 18:57:25 it is a key factor. 18:57:28 We looked at how participation in society 18:57:31 was 18:57:32 an indication, livelihoods, healthcare, 18:57:34 banking and so on. 18:57:35 Initially, we thought 18:57:39 of disability in terms of types of disability 18:57:42 rather than functionality, and we 18:57:44 got the disability was hearing, visual, 18:57:46 physical, but then it evolved into basic 18:57:50 activities, instrumental activities, 18:57:51 but I think it's still 18:57:53 evolve further. 18:58:07 Independent living was originally considered as 18:58:10 public space access alone that it has 18:58:12 transitioned into private space as well as 18:58:15 the digital space. So that is my 18:58:17 presentation. Thank you. ROHAN 18:58:19 SAMARATUNGA: Thank you Dilshan Fernando. We now 18:58:21 have 50 minutes, I believe, for discussion. 18:58:27 I have one hand up. 18:58:32 But if you can be a bit 18:58:34 patient, we have 18:58:44 a few more speakers lined up. 18:58:47 I'm going to ask 18:58:50 Gerard Goggin to moderate this 18:58:54 session because I may have to peel off halfway 18:58:57 through. But Gerard, could you 18:58:59 take over? 18:59:04 I can already see Hansa going up so I think we 18:59:08 will have a rich discussion GERARD 18:59:11 GOGGIN: Fantastic. Thank you so much 18:59:13 Rohani,. I would invite the first 18:59:15 three speakers to just launch away and I think 18:59:18 people can 18:59:19 catch up with their bios later on peered so 18:59:22 Victor, obesity you 18:59:24 -- over to you first. 18:59:33 SPEAKER: To 18:59:35 kick off the discussion I would like to 18:59:39 speak about my 18:59:41 two buzzwords 18:59:48 that relate to the discussion that came 18:59:50 before me. Perhaps my first 19:00:00 is a transnational which relate to the Asia 19:00:03 world that tries to bridge not just looking 19:00:06 at country specific circumstances but 19:00:08 thinking about how 19:00:09 an international instrument can 19:00:14 push towards greater mock inclusion in 19:00:17 countries you'd especially 19:00:18 as it pertains to 19:00:19 disability appeared 19:00:22 . 19:00:24 Y 19:00:25 . 19:00:34 Thinking about the iPhone. 19:00:41 How the iPhone creates potential, inclusive 19:00:43 environments for people with vision impairments. 19:00:45 In Singapore, 19:00:50 I have friends of mine who say that the 19:00:53 development of the iPhone has been life 19:00:55 changing for them. I think the question of 19:00:58 how the iPhone is also transnational, we should 19:01:01 also situate 19:01:02 the iPhone as a transnational 19:01:04 development. To those who develop by 19:01:08 Apple. In a sense, this kind of 19:01:11 transnational lens, 19:01:14 affords us a different understanding of how 19:01:16 technologies are also created, 19:01:19 not just within countries 19:01:22 but also across nations. 19:01:24 I think so 19:01:26 we're focusing on translating 19:01:29 the transnational, the global into country 19:01:32 specific 19:01:33 . It is very 19:01:36 powerful and useful. 19:01:44 I think the first buzzword for me is 19:01:47 transnational. I think the other 19:01:49 buzzword that thinking about in terms of 19:01:51 building upon this early discussion is really the 19:01:54 concept of inclusion. We've talked about it 19:01:57 quite a bit as well. I'm thinking inclusion 19:02:00 to also not just look at 19:02:02 the problems 19:02:07 in specific countries, in adopting ICT and 19:02:10 technology, and supporting 19:02:11 disabled people's inclusion 19:02:15 also, I think there is a real need to examine 19:02:18 inclusion as an ideal that is perhaps 19:02:21 increasingly 19:02:22 (inaudible). I think we see that 19:02:26 in the understanding of how emerging 19:02:28 technologies can also create 19:02:32 blooms of exclusion. Emerging technologies 19:02:33 that proclaim themselves to be 19:02:35 inclusive 19:02:37 , that proclaim themselves to enable 19:02:40 disabled people 19:02:43 . So, inclusion itself, 19:02:44 especially as it 19:02:47 cakes a disability and technology can and should 19:02:54 (inaudible) and that could be the next 19:02:57 generation of research 19:02:59 . That is it for me. I 19:03:02 think those are the two buzzwords. 19:03:04 Transnational and inclusion 19:03:05 . 19:03:12 GERALD GOGGIN: thank you very much, that is 19:03:15 terrific. We will go to the next 19:03:18 two speakers next we have Isabel who is the 19:03:21 insight directors 19:03:23 from (unknown term) from an organisation 19:03:25 which has had a long lineage of doing work in 19:03:29 this area. It is over to you. 19:03:31 SPEAKER: Thank you. So interesting to see 19:03:34 the presentation as well. 19:03:35 From the research that we have done at GSM a, 19:03:39 the key points that I want to 19:03:42 bring out is the importance of mobiles 19:03:44 for persons with disabilities. We've seen 19:03:47 this time and again in our research with 19:03:49 persons with disabilities who do have 19:03:52 access to a mobile see that as being really 19:03:55 critical for being able to connect with and 19:03:58 family, participate in the wider community, to 19:04:01 get 19:04:03 access to information and learning. But also 19:04:05 really important other features like financial 19:04:07 services that are so much more accessible via 19:04:10 a mobile, especially smartphones. We saw in 19:04:13 the earlier presentation about the disability gap 19:04:15 for owning 19:04:17 a phone, for accessing mobile Internet 19:04:19 we have also died down 19:04:21 a little bit 19:04:22 on smart phones 19:04:29 and looking at how important it is to 19:04:32 understand disability disaggregated data. 19:04:34 I think we often talk about the importance of 19:04:37 collecting data on disability 19:04:38 , persons with disability vs 19:04:40 nondisabled persons. 19:04:44 But what we have seen in this last year, using 19:04:47 the Washington group set of questions is how 19:04:50 different we found responses 19:04:55 by type of disability. So there is a really 19:04:58 important point for me to bring out here is 19:05:02 that people's needs, the barriers they face 19:05:06 really do differ by disability type as well 19:05:09 as by gender, location, education 19:05:11 and employment are other factors but 19:05:13 understanding 19:05:13 the different levels of access 19:05:17 by disability type is also critical. 19:05:19 Other than lumping everybody together 19:05:25 in terms of disabilities. That can 19:05:27 be used to create more relevant 19:05:30 products and services for products and 19:05:32 disabilities. 19:05:33 An interesting point that we have seen into 19:05:36 different 19:05:40 points of country research recently, one 19:05:42 intro anchor and one in Ghana was the really low 19:05:46 levels 19:05:50 / 19:05:50 . 19:05:59 Was the low levels of disability features on 19:06:02 smartphones. What is great for us to 19:06:04 understand as most people who do not have a 19:06:08 disability know about accessibility features 19:06:09 on a mobile phone. They know how to 19:06:12 increase the font size, they know using speech 19:06:15 to text, or speech 19:06:17 to audio, 19:06:18 they know about video calling, 19:06:22 closed captions 19:06:24 on there too. 19:06:26 But how low the awareness is 19:06:32 amongst people with disabilities which it 19:06:34 could have the greatest benefits. 19:06:36 Just thinking about the smartphones 19:06:40 . We saw that disability 19:06:42 gap. For example, in Sri Lanka 19:06:44 people are 50% 19:06:54 less likely to smartphone the 19:06:56 nondisabled person. If you look at that by 19:06:59 disability type, we see that people with speech 19:07:01 impairments have the highest levels of 19:07:04 smartphone ownership. 19:07:10 If we think about that, you think of the benefit 19:07:14 of somebody the speech impairment have access 19:07:16 to video technology on a smartphone to be able to 19:07:20 use sign language, to be able to have access to 19:07:23 subtitles, and all of the other technologies 19:07:26 that can be plastered into a smartphone. I 19:07:29 think I'm talk about access to technology, I 19:07:32 really want is to keep that smart phone in 19:07:35 mind. And that is where the 19:07:37 conversation started right at the beginning 19:07:39 about people going directly to smartphone 19:07:42 use and the ability to have that minicomputer 19:07:45 in your pocket. That ability to cluster 19:07:47 different types of technologies that could 19:07:49 help persons with disabilities differing 19:07:51 by different types of disabilities that they 19:07:54 have. So just thinking about 19:07:56 that. 19:07:59 On the accessibility features, one of the key 19:08:02 barriers we saw to why people don't either 19:08:05 own a phone or why they don't 19:08:10 use Internet, with the perception of my 19:08:13 condition limits my ability. 19:08:15 That for me really highlights this 19:08:19 issue of people not been aware of 19:08:21 accessibility features that could help them to 19:08:24 overcome 19:08:24 this key issue of accessibility 19:08:26 that actually there are ways 19:08:30 that smartphones can assist independent living 19:08:33 in this way. 19:08:34 That could overcome 19:08:38 a lack of literacy challenges for example. 19:08:44 I know affordability is a really key issue that 19:08:47 comes up time and time again and surveys around 19:08:51 my people don't own a phone and particularly 19:08:53 smartphones, one thing to highlight here 19:08:56 is the other research that we are doing at GSM 19:08:59 eight around affordability. 19:09:02 It is for all low income people, it is a 19:09:05 major challenge to earning a smart phone is 19:09:08 affordability. 19:09:09 There are upcoming, new innovative ways to 19:09:12 finance smartphones by being able to 19:09:14 pay for them in small increments. 19:09:24 Other financing options through microloans, 19:09:26 there is much more local smartphones available 19:09:29 now, although they don't always have the same 19:09:32 level of accessibility features as the 19:09:34 smartphones. Those are the key points 19:09:36 I just wanted to make, just the importance 19:09:39 of smartphones and really thinking about 19:09:42 this aggregating disability data 19:09:43 by type of disability 19:09:48 because the insights that we can get from 19:09:51 that that can be used by the private sector and 19:09:54 the public sector to design better 19:09:57 polyps and services for persons with 19:09:59 disabilities are not put everyone in one basket 19:10:02 is really critical. Thank you, back to you 19:10:05 Gerald. 19:10:08 GERALD GOGGIN: that was really very interesting 19:10:10 and very significant to unpack that. I really 19:10:13 appreciate that. On now to our third 19:10:16 professor 19:10:16 Raul would you like to speak now 19:10:19 ? And very interested in 19:10:21 what you have to say. 19:10:26 SPEAKER: 19:10:30 I think the discussion is getting more and more 19:10:33 interesting. I think I'm sure all of 19:10:36 us are learning from this discussion. 19:10:41 I actually represent a lab where we are 19:10:43 actually working on 19:10:46 assistive technologies for visual disabilities 19:10:47 for the last 15 years. 19:10:49 We work on all three aspects 19:10:55 in terms of awareness, affordability and access. 19:11:02 Now, I just wanted to change the course of the 19:11:05 discussion in a slightly different way. 19:11:08 In the sense that generally the 19:11:11 traditional route of innovation is that you 19:11:13 do research and then you try to exploit the 19:11:16 research through translation 19:11:21 in terms of solutions and policies. But I 19:11:24 think our experience has been slightly different. 19:11:26 We actually started with using 19:11:34 existing assistive technology devices and 19:11:36 taking them to people to make an impact, more in 19:11:39 terms of an application. But I think it actually 19:11:43 threw a lot of new research so that to 19:11:46 share one or two examples to do that. We 19:11:49 were actually working 19:11:51 on this Braille display device a few years back. 19:11:59 Almost when we actually did the research we 19:12:02 found that India has almost 0 penetration of 19:12:05 professional Braille devices. Almost like 10 19:12:07 years back. And if I really want to 19:12:10 take one of the existing ones which 19:12:13 to market to people it is completely 19:12:15 unaffordable. 19:12:15 One way is to actually bring subsidy, you bring 19:12:19 government funding to take out the people 19:12:22 that was also not enough to reach a large 19:12:26 number of people. 19:12:27 So we were actually trying to look at how do 19:12:30 you develop 19:12:31 a new technology because affordability, 19:12:33 sometimes requires you 19:12:34 to completely go back and look at 19:12:37 technology, 19:12:39 including ICT technology and 19:12:50 making a new way to make it accessible. Six 19:12:53 years of research to come up with new real 19:12:56 devices. My idea was how to make 19:12:59 these devices 1/10 of the national cost. 19:13:01 Although we were not successful in making 19:13:04 1/10 but six years gave us an opportunity to 19:13:07 give us 16 of going through $6000-$1000 19:13:10 device 19:13:13 . 19:13:18 The second example 19:13:23 is that we were also trying to see how to make 19:13:29 pictorial content accessible to people who 19:13:32 are visually challenged. So we were working on 19:13:34 tactile diagrams people can actually 19:13:37 touch and use the tactile route 19:13:40 to get the pictorial content 19:13:43 and probably do their stem education. 19:13:54 One thing that we realised is that we 19:13:57 could actually spend a few years to come up 19:14:01 with very affordable tactile diagrams using 19:14:03 digital technologies like 3D printing but is 19:14:05 through up a completely new research challenge. 19:14:08 When we took some of these diagrams etc. we 19:14:11 felt that 19:14:12 the manufacturing is not the key issue, the 19:14:15 key issue is the design of these diagrams 19:14:18 . Most of the pictorial 19:14:20 content is actually designed 19:14:22 for a visual route to learning and it does not 19:14:25 work for tactile learning. We need to 19:14:27 completely redo. 19:14:34 What we have found is many theories of visual 19:14:37 communications known for the tactile route and we 19:14:40 had to completely do new research to public with 19:14:43 this aspect. 19:14:44 I think even the way people perceive these 19:14:47 contexts is very 19:14:52 different. Just to give an example, 19:14:54 we were actually doing a small child trial with 19:14:57 the school 19:14:58 where we ask kids to sketch a tree 19:15:02 and one of the girls actually sketched a 19:15:04 circle. We were wondering why 19:15:06 did this girl actually 19:15:09 sketch a circle for a tree? When we went and 19:15:12 asked her, I think her way of interacting 19:15:16 with the tree is that she goes and hugs the 19:15:19 trees trunk every day and it is a circle for 19:15:23 her. Understanding these 19:15:24 concepts 19:15:25 that actually requires much more research 19:15:29 if you want to make assistive technologies 19:15:41 Particularly mobile apps, how accessible 19:15:42 they are 19:15:43 in terms of 19:15:53 people with visual impairment and 19:15:55 blindness. What we found is that 19:15:57 you may follow all of the standards and 19:16:00 guidelines for example with the WC 80 19:16:02 guidelines which has been well laid out 19:16:05 . 19:16:06 But this only takes care of the 19:16:10 (inaudible) were not the user 19:16:14 experience. Most of the people who 19:16:16 use traditional apps are somehow able to use 19:16:20 the apps but it is not the same experience that 19:16:24 sighted people would have. 19:16:26 But looking at the new guidelines for the 19:16:29 usability and user experience. 19:16:34 We started with an application 19:16:36 which 19:16:39 gave new challenges. 19:16:44 We now have a large number of PhD students 19:16:47 were trying to address this so that we can 19:16:51 actually make much more impact. I thought I 19:16:54 would share that, thank you. 19:17:01 GERARD GOGGIN: 19:17:08 Engaging in quite a radical thinking in some 19:17:11 ways, very engaging, so thank you. 19:17:13 We have now got 1/2 an hour or so for 19:17:17 discussion so 19:17:22 . 19:17:29 J 19:17:30 anit 19:17:31 ha 19:17:39 would like to enter the discussion first? Speak? 19:17:42 Thank you very much appeared I'm impressed 19:17:44 that the discussion is going to depth that I 19:17:47 have never seen. 19:18:02 A person living with a disability and also at 19:18:06 the same time engaging in some level of 19:18:08 research by way of doing my own research as well 19:18:12 as supervising and providing constructive 19:18:14 criticisms to other people'Ss 19:18:16 research, something that I have come to 19:18:19 understand 19:18:20 over the years is that 19:18:26 in the global South especially, 19:18:27 people consider assistive 19:18:29 technologies 19:18:33 or the kind of interfaces which 19:18:37 technology by way of smart phones and 19:18:39 accessible 19:18:41 devices and access to devices have built 19:18:44 , is viewed as some sort of 19:18:46 exhaustive sized 19:18:48 form of technology. 19:19:07 It is something that they feel is difficult 19:19:09 to manoeuvre why because in western sort of 19:19:12 bodies of knowledge about disability 19:19:14 inclusion, there is the notion that if 19:19:18 a certain product or service is accessible for 19:19:23 people with disabilities it is going 19:19:25 to be good for everyone. I saw that somebody has 19:19:29 mentioned some thoughts about this on similar 19:19:31 lines of the chat as well. But in the global 19:19:35 South 19:19:36 , if you run a Google search about certain 19:19:39 accessiblyi 19:19:40 ty 19:19:42 features on smart phones, 19:19:49 example I am a user of talkback. I googled a 19:19:52 certain brand 19:19:54 and their accessibility will 19:20:07 talk about because most of these come preloaded 19:20:10 with their own user interfaces on top of the 19:20:13 main operating system so before we buy these we 19:20:17 should check whether I'm going to work smoothly 19:20:20 in talkback. But to my utter 19:20:22 amazement, the top video results I got were how 19:20:25 to disable talkback on your smart phone. And I 19:20:28 think that going by the lines were somebody was 19:20:32 mentioned about quantity research, this is 19:20:34 something that research firm should invest in 19:20:36 because I know the kind of research that 19:20:39 LIRNEasia it was such great effort 19:20:41 , in Shankly's, I realised that it was 19:20:44 quite challenging for those people who were 19:20:47 looking for persons with disabilities to find a 19:20:50 sample that 19:20:54 uses this assistive technology appeared so 19:20:56 that is one thing. And then on the other 19:21:00 hand, 19:21:04 it's 19:21:08 says in (inaudible) 19:21:11 . On the other hand 19:21:13 however, 19:21:15 the research organisations and 19:21:17 researchers have 19:21:18 ample access to the society at large 19:21:21 where we can see 19:21:25 how the perception of the society at large 19:21:28 its towards 19:21:30 technologies which 19:21:32 power up accessibility 19:21:36 were assistive technologies included 19:21:38 Beard 19:21:39 . 19:21:43 I was just going to touch on that, maybe 19:21:45 some kind of future area of research. It would be 19:21:49 good to 19:21:51 see how society perceives these 19:21:53 technologies go and how 19:22:01 culturally inclusive they can be made into so 19:22:04 that they are also closely ingrained to us. 19:22:07 Among the various 19:22:09 retail shops to which I went in search of mobile 19:22:13 phones, only a couple of 19:22:15 retailers knew how to enable accessibility 19:22:17 features over here. It may be 19:22:23 a lack of regulations and legislation is being 19:22:26 passed in November that a fixation of (unknown 19:22:29 term) and flanker but I think it may be common 19:22:33 in a lot of countries in the global South. 19:22:36 There are a lot of scholars in this space 19:22:43 who are more eloquent in that area than me, 19:22:46 but I hope that something great. But 19:22:49 also I just want to mention briefly 19:22:51 or touched briefly on what was mentioned about 19:22:54 fashionable rail and a tactile way of 19:22:57 sort of 19:22:59 visual interpretation. I mean, I have tried to 19:23:01 see where the problems 19:23:06 are originating from and my understanding was 19:23:08 that to even get to these actuators which 19:23:11 are used in Braille 19:23:13 cost a whole lot. That is why it is very 19:23:17 difficult to reduce that cost. But 19:23:23 when I was researching other avenues, something 19:23:26 I realise was that some of these carbon fibres 19:23:29 and things like that which are receptive to 19:23:32 electromagnetic manipulation may be they 19:23:34 can be utilised 19:23:35 and there are lots of such alternatives which 19:23:38 can facilitate tactile communication. 19:23:48 Technology wise and scientific research 19:23:49 wires, those are some ways that may be you can 19:23:53 pursue in terms of research and then moving 19:23:56 on to implementation an applicant ocean 19:23:58 -- application also. 19:24:01 So those are some of my thoughts. 19:24:06 GERARD GOGGIN: Thank you very much for you to 19:24:09 those thoughts you may be thinking very much. 19:24:12 We have 20 minutes or so left for others if 19:24:16 anyone else would like to join the conversation 19:24:18 and make comments or ask questions. Thinking of 19:24:21 different threads that, 19:24:26 that would be terrific. And how various people 19:24:29 in the chat might feel who have been active and 19:24:33 may want to take the opportunity now to act 19:24:36 more -- add more pickup in different things could 19:24:39 . 19:24:42 SPEAKER: I just want to add to what this previous 19:24:46 speaker had said. 19:24:51 One of the things which we found is that 19:24:55 one way to look at assistive technology is 19:25:00 purely from the functional perspective 19:25:01 where you are actually trying to 19:25:05 bring functionality of this thing. But what we 19:25:08 found over these years is 19:25:13 that one type of value comes when you 19:25:16 give value to assistive technology. 19:25:20 But I think the real penetration and value 19:25:23 comes when you only look at 19:25:28 assistive technology more from their 19:25:30 inclusion, independence, participation and social 19:25:32 integration perspectives. 19:25:37 I think often when we do these technologies 19:25:40 we concentrate on these 19:25:41 aspects and 19:25:43 forget the real social benefits 19:25:48 of real social concepts should be back 19:25:58 kept in mind. GERARD RYLE: Thanks very 19:26:01 much. Sarah, I can invite you 19:26:03 to join the conversation. You have a 19:26:05 hand up? SPEAKER: 19:26:12 One of the things that 19:26:14 – I'm going to be talking tomorrow so 19:26:21 I won't add to some of things I 19:26:33 say in terms of theory talk. But I'm aware that 19:26:36 when Gerard and also others were talking 19:26:39 about research needs. I was particularly 19:26:41 interested in the expense of doing big 19:26:44 research projects like this. I was wondering 19:26:46 whyat people meant in terms of 19:26:48 use. 19:26:49 They might be the possibility for you 19:26:53 reuse, extra analysis and not repeating 19:27:05 in different locations. I think I would just 19:27:08 really appreciate anybody's thoughts on 19:27:10 archiving because it is something I'm aware of 19:27:13 in terms of government funded research in the 19:27:16 UK paid we have the UK data archive but it is 19:27:20 not a picture that I have an international 19:27:23 group in. Thank you. GERARD 19:27:25 GOGGIN: Set is a great question thank you. Does 19:27:28 anyone want to respond? 19:29:03 Speak? I think this is a great 19:29:05 question put learn 19:29:32 Speak? I don't have an answer 19:29:39 and some of the archives are designed for 19:29:42 reuse 19:29:43 or design for teaching 19:29:51 and accessibility being a big issue. 19:29:54 But it is being 19:29:59 useful to get that kind of you and I'm 19:30:02 interested in what Isabel has to say about 19:30:05 GSM a data may be because 19:30:11 for me it maybe highlights my need to 19:30:14 talk to some of the big funding agencies in the 19:30:18 UK about whether we can extend to other 19:30:21 audiences and what the capacity is. 19:30:24 affordable. 19:30:29 It is very helpful to hear what you are 19:30:33 talking about, Helnaia 19:30:34 ni. 19:30:39 GERALD GOGGIN: that sounds like a good thing 19:30:42 to think about as a pilot project 19:30:49 given there is a bit of money around for things 19:30:53 on digital, social scientific humanities, 19:30:54 the repositories in the archives it could be 19:30:57 quite interesting. We will pop out of the 19:31:00 rabbit hole, that was a good one to go down. 19:31:04 Other questions or comments or perspective 19:31:06 people wanted to bring to bear? We have still 19:31:09 got a good 15 or 20 minutes of please feel 19:31:13 free to pick up some of the threads of this 19:31:17 conversation. Katie. SPEAKER: I have 19:31:18 been thinking about since the first session 19:31:21 was the 19:31:23 idea of internalised able is. 19:31:25 Just the fact 19:31:28 , I think you said that 19:31:30 people disabilities 19:31:33 with the accessibility 19:31:36 features 19:31:45 are aware and people with disabilities 19:31:47 weren't. And being in relation to 19:31:49 personalisation rather than excess ability and 19:31:51 what role internalised able is in place that 19:31:54 with people with disabilities aren't 19:31:56 engaging with these features when they are 19:31:58 there to help them. I have no answer 19:32:01 but it seems to me that this is something 19:32:05 that needs to be considered and thought 19:32:07 about in this context as well. 19:32:13 GERALD GOGGIN: that is really interesting. I 19:32:16 think that was in the way that Dilshan 19:32:21 was picking up and turning it around. This 19:32:24 is one of the great conceits, isn't it and 19:32:27 perhaps that building desist disability, 19:32:30 brings in larger groups and populations but as 19:32:33 you are talking about this issues of 19:32:36 internalised able is, or perhaps 19:32:39 narrow concepts and exclusionary concepts 19:32:41 being brought to bear 19:32:44 and inscribed, perhaps in the technologies, it 19:32:46 is a thorny problem. 19:32:52 SPEAKER: I think it also relates to what you 19:32:55 were saying earlier about what is the story 19:32:58 that we are telling here, is it just 19:33:01 inspiration porn or is it the story that we are 19:33:04 telling ourselves about these technologies. 19:33:09 GERALD GOGGIN: it is tricky grounds to the 19:33:12 extent of which, some ways of looking at this 19:33:15 narrative is can help bring in 19:33:18 more groups into a conversation and into a 19:33:20 movement around but 19:33:22 some of the ways in which this frame can be 19:33:25 problematic as well. 19:33:28 In its own right. So, anyone else want to 19:33:32 pick up that thread or add other things? 19:33:35 SPEAKER: 19:33:36 Just taking that discussion forward about 19:33:38 able as am 19:33:40 and digital able of them is if there is 19:33:48 a term. I also want to go back 19:33:51 to the global South question here about and 19:33:54 looking at some of those divides that the 19:33:57 research has highlighted in terms of the 19:33:59 rural/urban. And the question of 19:34:02 the framework. When we talk about the 19:34:05 rural areas 19:34:13 , say in the South Asian context, there is just 19:34:16 so much infrastructural frailty experienced by 19:34:19 the population at large. And then disabled people 19:34:21 experience that above and beyond. 19:34:28 I think that is where Abel is and comes in 19:34:32 there, there are these competitive 19:34:34 social issues 19:34:37 which I think there's something writing in the 19:34:40 chat as well, 19:34:41 like how do we talk about 19:34:43 diversity and inclusion 19:34:45 when the budget is limited and we talk about 19:34:51 building roads vs building 19:34:54 ramps. 19:34:57 So when we talk about digital access to, 19:35:02 I'm just trying to think about how in the 19:35:05 global South, though so many layers 19:35:08 of structural disadvantages 19:35:12 that kind of add up to disability 19:35:19 and the digital because it is a digital divide 19:35:23 broadly speaking as well across the urban educated 19:35:26 class divide 19:35:27 ethnic divide 19:35:30 and then there is disability that cuts 19:35:33 across all of those 19:35:40 are just in terms of thinking in terms of 19:35:43 practice and research and those questions and 19:35:46 concerns. GERALD GOGGIN: thank you 19:35:48 very much. 19:35:51 It is a challenging agenda but an incredibly 19:35:54 important one. 19:35:55 I am wondering 19:36:02 is if to do exactly what you are indicated 19:36:05 to try to bring together those things. Often we 19:36:08 have the experience in working in the policy 19:36:11 or working perhaps whether it is in the 19:36:14 technology design that those broader sets of 19:36:17 issues are not brought to bear. 19:36:19 And worked through. In some ways, the 19:36:21 imagined users of technology 19:36:23 are not people in a range of rural locations 19:36:27 or in different life circumstances, 19:36:29 it may be the majority. 19:36:31 And to get that on the agenda 19:36:35 around technology policy still seems to be 19:36:38 a big undertaking, 19:36:43 the marshalling of research isn't always 19:36:45 some ways about that it is the strategies and 19:36:48 advocacy. That seems to be 19:36:50 important work to do and to keep doing. 19:36:54 That is Robert a simplistic response in 19:36:56 some ways. What do others think? 19:36:59 Others want to take up some of what 19:37:01 has been said 19:37:03 and laid out here? 19:37:10 SPEAKER: I you wanted to add. It is very true 19:37:14 that when we look at assistive technologies, 19:37:16 the penetration in rural areas is 19:37:19 really, really poor. There is a huge divide. 19:37:22 But think what gives us hope 19:37:24 , maybe some more recently, 19:37:33 critically the way that the vaccine could 19:37:35 penetrate all the people, why not existing 19:37:38 technologies? Maybe we need to use 19:37:40 those models to properly see if we can build 19:37:43 around something. 19:37:44 But a lot of digital technologies were used 19:37:47 to reach out to people for vaccination. 19:37:51 We have not liberalised lows for the system. 19:37:54 SPEAKER: That is great. GERALD GOGGIN: 19:37:57 what you think those things might be? 19:37:59 What are we missing their 19:38:01 re 19:38:01 ? 19:38:04 I'm just wondering, for instance 19:38:06 the reality of it 19:38:10 , is that something that can be leveraged in the 19:38:13 way that you are saying 19:38:15 with the vaccine, to be saying digitalisation 19:38:17 has been come so important now, 19:38:20 what other thoughts you have? SPEAKER: 19:38:22 I think one thing is firstly the vaccines 19:38:25 were made free 19:38:26 , or developed free actually. 19:38:28 I think 19:38:29 assistive technologies 19:38:31 we still don't have a very 19:38:35 good system to do that. 19:38:41 I think that needs to improve. And some of the 19:38:45 digital technologies that were used, for 19:38:47 example, the mobile apps 19:38:49 and even exam for example the national 19:38:51 identity cards, etc. were used very 19:38:53 extensively, we still have not 19:38:57 liberates that. SPEAKER: I know 19:39:00 in India they have the UDI D system 19:39:02 which is a universal ID 19:39:04 for disability 19:39:07 which they're trying to digitalised digital bill 19:39:14 -- disability services through the ID. SPEAKER: 19:39:16 I think through that they are able to reach 19:39:30 out to about 6 million but I think they still 19:39:33 have to reach out to much larger. That is 19:39:37 still about 25 to 30%. SPEAKER: And there are a 19:39:40 lot of gaps, even in the UDI D, I've been hearing 19:39:44 that from the community. So, yeah there is so 19:39:47 much scope there. GERALD GOGGIN: I have to 19:39:50 ask, and maybe getting this necessarily, but is 19:39:53 there a formal articulation between the 19:39:56 raft of digital India policies and the 19:39:58 disability accessibility? Is that 19:40:00 what you were saying about the UDI D card 19:40:03 ? That there is some link? 19:40:05 I'm just wondering at a policy level houses 19:40:08 articulated in so many countries have some kind 19:40:11 of, Indonesia has a collet digital Indonesia 19:40:13 but there's a whole set of digital policies. 19:40:16 Maybe one hoped, maybe vainly that you could 19:40:19 yoke and 19:40:20 accessibility, assistive tech, 19:40:22 disability in policies into those 19:40:24 . SPEAKER: 19:40:29 Actually my current research is looking at 19:40:31 digital identification so this is very 19:40:33 exciting. I am looking at 19:40:42 (unknown term), that is a digital identification 19:40:45 system in India and we have a disability, there 19:40:48 is the different UDI D system which has just 19:40:51 been rolled out. It has been there on the 19:40:54 papers for a while but there are convergences, 19:40:57 a difference of convergences between the 19:41:00 national ID and the disability ID and there 19:41:03 is a lot of digital divide again on how 19:41:06 people can get the digital ID. Now, even 19:41:09 software is being used to assess disability 19:41:12 and in South India, they have this policy 19:41:14 where 19:41:15 they give disability pensions based on 19:41:20 assessment of disability through these 19:41:22 algorithmic programs. 19:41:24 Those are fascinating in how disability 19:41:29 , how it is mind through the software is. 19:41:38 In the name of for accuracy and 19:41:40 transparency and efficiency 19:41:41 , 19:41:46 there are some advantages of using that 19:41:48 but it is also 19:41:50 not without its own limitations because 19:41:53 at the end of the day, it is again 19:41:56 using a very biomedical model 19:41:58 of assessment and then 19:42:02 algorithms who're designed by 19:42:04 policymakers, red, technologies 19:42:05 to reproduce 19:42:08 the same biases 19:42:20 . And so, in how they come 19:42:22 for disability and the barriers and things 19:42:25 about. So there are a lot of 19:42:27 interesting things going on in India in 19:42:30 experimenting and how digitalisation can reach 19:42:32 disability. 19:42:33 I think that discourse is still very nascent 19:42:36 and the research 19:42:37 is very limited 19:42:45 at this point, I would love to talk more on my 19:42:49 own research but just to say that the whole 19:42:52 digitalisation in terms of how it is now become 19:42:55 such an important part of the disability 19:42:58 welfare system is both promising but there is 19:43:01 also gaps in who can 19:43:07 access these welfare systems when everything 19:43:09 is computerised and people don't have access 19:43:12 to computers in the villages 19:43:14 or biometric systems may not be accessible. 19:43:16 In kinds of disabilities like people on the 19:43:19 spectrum 19:43:20 of people with leprosy issues where their 19:43:22 fingerprinting 19:43:23 , their diseases 19:43:25 has caused a barrier 19:43:29 in capturing the fingerprint. 19:43:31 I think there are those issues 19:43:33 that we need to tackle 19:43:35 the above embodied 19:43:37 but are also 19:43:42 the political economy of how these algorithms 19:43:45 and the biases and again 19:43:47 are permeating 19:43:49 in these technologies. 19:43:59 It is to restrict the limit welfare state. The 19:44:02 technology to theirs a small aspect of the 19:44:05 digital authority that gets 19:44:07 manifested or channels through these digital 19:44:09 algorithms or data vocation and so on. 19:44:16 GERALD GOGGIN: thank you very much. We got 19:44:19 two people with hands up. Jani 19:44:21 tha, 19:44:23 would you like to go ahead? SPEAKER: 19:44:29 I am just thankful for Kate for raising 19:44:32 the able is aspect 19:44:35 of this whole study area. 19:44:39 At the other side of things, 19:44:42 I don't know whether 19:44:45 enough research has been focused on 19:44:49 the kind of social conditioning 19:44:52 that 19:44:53 especially 19:44:56 has overtaken 19:44:57 persons 19:45:00 with disabilities over the years. Especially in 19:45:03 the global South. I don't know 19:45:06 , going by what I see on social media, 19:45:09 even from the other parts of the world, 19:45:12 it seems to be a factor 19:45:14 because 19:45:16 the UN for certain things 19:45:21 , one that was discussing about UDI D 19:45:24 and the ways of assessing and verifying 19:45:26 disabilities 19:45:34 and especially using software to assess 19:45:36 system and the biometrics, 19:45:38 that also must be 19:45:40 influenced 19:45:43 by the social conditioning 19:45:44 . 19:45:48 Because, as we talk about the intersectional 19:45:50 to 19:45:52 that someone earlier touched on, poverty 19:45:58 , Internet poverty and gender and all of these 19:46:01 factors also play their own perspective roles 19:46:04 and considering the kind of 19:46:07 liberate which is lost with each of these 19:46:10 negative influencing factors for one's 19:46:12 quality-of-life 19:46:14 , or one's independence of making their own 19:46:17 choices, 19:46:20 I see persons with this ability is often 19:46:23 being 19:46:25 encouraged to 19:46:27 celebrate the smallest achievements. 19:46:45 Futuristic and looking 19:46:46 framework 19:46:49 . 19:46:53 s 19:46:55 . 19:46:59 I was wondering the last couple of minutes 19:47:02 we have, would anyone be willing to see 19:47:05 or share with us any researcher has been done 19:47:08 in this access 19:47:09 aspect of social conditioning. 19:47:14 ? 19:47:17 GERARD GOGGIN: Thanks so much. 19:47:22 If it's OK we will just hold that question for a 19:47:26 minute and just move to 19:47:27 (Name) to give you the opportunity to say what 19:47:31 you want to say. 19:47:35 SPEAKER: Thanks, I really do like a little 19:47:37 bit of exploration of this internalised table 19:47:40 is in. ableism. 19:47:48 You would think that we are all temporary 19:47:51 ILY 19:47:53 labelled because we are all getting old 19:47:59 and yet that has not happened. 19:48:21 What? 19:48:31 Why is it 19:48:36 ? It's like the disabled 19:48:38 are like the women of 50 years ago is 19:48:49 ? 19:48:52 Is disability the last frontier 19:48:54 ? 19:48:57 Because why 19:49:08 , market forces are not working because everyone 19:49:11 wants to make money and certainly the companies 19:49:14 do. Unless we are so slow. 19:49:16 It is just that there is so much money to be made 19:49:20 elsewhere. GERARD GOGGIN: Thanks 19:49:22 very much. And we have Regina, then 19:49:24 Sharon Sarah. 19:49:25 SPEAKER: I just wanted to share that I'm here 19:49:28 because of 19:49:30 our policy work in the Philippines on 19:49:32 disability but I also want to share that 19:49:43 by training I am a psychologist pits of 19:49:46 these interesting questions to me. When we 19:49:48 talk about market forces, in the 19:49:51 Philippines there is really no market for the 19:49:54 sector itself. Even though the world 19:49:56 health organisation would say that 15% of 19:49:58 any given population is in it, why are they not 19:50:02 given a voice or a seed where decisions are 19:50:05 being made? If you look at it from a 19:50:08 social psychology perspective, it is 19:50:10 really about power. They do not have the 19:50:13 political power to have a seat at the table. We 19:50:17 have to be taking care of in and the needs that 19:50:21 you have we have. Even in the 19:50:26 sector worked out 19:50:32 what? When you look access and 19:50:34 translate the power 19:50:53 . 19:50:56 In our line of work, big part of the chain 19:51:00 has to be understanding 19:51:04 change has to be understanding what 19:51:06 inclusion is bigger problem in the research 19:51:09 given earlier is not the person with this ability 19:51:12 but actually the barriers in society that 19:51:15 hindered them to live independently and 19:51:17 meaningfully. When you go to that kind 19:51:19 of discourse, there is a certain level of 19:51:22 diversity in the readiness of people to 19:51:25 accept or even to open their perspective to 19:51:28 that the 19:51:37 discussion. Because in the 19:51:38 Philippines we are stuck with accessibility 19:51:41 ramps, that is the kind of level we are dealing 19:51:44 with when you talk about accessibility in the 19:51:47 Philippines, it is welcome we have around. 19:51:50 But you know, ramp is not accessible in – 19:51:53 inclusivity, is a ramp gold? Maybe not. At the 19:51:56 heart of it we have talk about it a lot and 19:52:00 thought about it in the Philippines but it is 19:52:04 really about the power and the power dynamics 19:52:06 appeared. A lot of it is really 19:52:09 cultural and mindset and it is a very complex 19:52:12 issue. But I think for our 19:52:14 work, the important thing is that it has to 19:52:17 be part of 19:52:24 the discussions. It will change the tide 19:52:27 eventually, that is hopeful, but that is my 19:52:30 two cents on the matter. I hope that I was able 19:52:34 to articulate my thoughts. Thank you. 19:52:36 GERARD GOGGIN: Thank you very much Regina, that 19:52:39 is terrific. Thank you. Next we have 19:52:41 Sarah. SPEAKER: I just want to 19:52:44 add one of those awful provocations which is 19:52:47 about ageing. 19:52:48 And where the conceptualisation of 19:52:50 ageing falls in this concession. 19:52:52 What was said really resonates 19:52:54 with me about 19:52:56 our seeing this discourse around us being 19:53:00 temporarily able, in particular with the 19:53:08 tech sector prayed when they try to get 19:53:11 purchases with people designing these 19:53:12 technologies, in particular. But I think 19:53:15 about this question not just about ableism 19:53:17 but ageism. And the extent to which 19:53:20 people are willing to self identify as 19:53:22 disabled or old. It seems like there are 19:53:25 two worlds of discourse here that do not 19:53:28 interrelate necessarily good in terms of buildig 19:53:34 tech, billions of being poured into age-related 19:53:36 technologies and that is where there is a lot of 19:53:40 technology money seen in terms of money 19:53:43 market value that people are 19:53:49 willing to extract around interventions and 19:53:51 so forth. So yeah, I do not have 19:53:54 an answer but I just wanted to say, kinda blue 19:53:59 loop back to what was said about Abell's and 19:54:02 the way that this courses 19:54:04 are structuring where age-related is ability 19:54:06 relates to inclusion and accessibility 19:54:11 . 19:54:13 GERARD GOGGIN: Thank you very much 19:54:15 . 19:54:18 Victor and I are working on (inaudible) 19:54:21 and from estate 19:54:24 -- estate it needs to be 19:54:26 unpacked and reconnected. 19:54:33 Did any others want to add anything? 19:54:35 At this stage? 19:54:37 VANDANA CHAUDHRY: 19:54:41 There is something about able a man and I 19:54:44 think universal design, you can 19:54:46 – I think that is one way to 19:54:49 combat some of that because 19:54:52 the society as we have seen is 19:54:57 more than willing to accommodate the quote on 19:54:59 quote 19:55:01 non-disabled populations 19:55:07 . So much if this 19:55:09 happened, like with the work from home. 19:55:11 Disabled people have been working to advocate 19:55:14 for this 19:55:19 as flexible working conditions for a long 19:55:22 time her but when nondisabled people 19:55:24 needed that, it was made possible. But it was not 19:55:27 made possible for disabled people. So that 19:55:30 goes also to the question of fatalism 19:55:32 ableism. Also for example 19:55:35 barcodes. If you go to a 19:55:37 restaurant to make a few barcodes to read the 19:55:40 menu. That means 19:55:41 that a blind person can go to the restaurant, 19:55:46 and they don't have to ask me to read it to 19:55:50 them. They can access it 19:55:51 through a screen reader. That has been done again 19:55:55 for the majority, like the dominant able-bodied 19:55:57 population. But that is universal 19:55:59 design because it is good for everyone. 19:56:02 It is good for people with disabilities, 19:56:04 without this abilities, yet to be disabled, 19:56:07 temporarily able to predict 19:56:15 . 19:56:18 I think we need to sell this marketable 19:56:22 aspect of the big 19:56:27 markets within the framework of universal 19:56:29 design. I think that might move 19:56:31 the needle 19:56:40 . 19:56:44 Although that is not a social justice argument, 19:56:47 it would help us to 19:56:51 bridge the gap even though we need to change 19:56:54 the rhetoric to see the audience for that is 19:56:57 what I think we need to find, those links 19:57:00 between universal design to show what helps 19:57:03 disabled people also help society at large. 19:57:06 GERARD GOGGIN: Thank you very much, Vandana 19:57:08 Chaudhry. 19:57:16 We only have a few minutes left but I was 19:57:19 wondering if Isabel, I could draw you back in 19:57:23 if you wanted to comment. You have been 19:57:26 doing 19:57:27 this kind of work for quite a while, this kind 19:57:31 of benchmark work about doing excessive patency 19:57:33 features in a database. 19:57:38 Clearly there are markets here and it 19:57:40 sounds like part of the work that you are doing 19:57:44 in your association is for some of the industry 19:57:47 participants trying to frame and get 19:57:54 out to customers about the benefits of 19:57:56 inclusion and accessibility, so would 19:57:58 be great to hear some of your reflections 19:58:01 actually in this conversation. ISABELLE 19:58:03 CARBONI: Just a couple of points to make 19:58:06 because I know the time is tight. But firstly I 19:58:09 want to mention that we have research that shows 19:58:12 when persons with disabilities do use the 19:58:15 mobile internet, they use it at the same rate 19:58:18 as nondisabled persons. So that is our big pitch 19:58:21 to the mobile industries in particular. Persons 19:58:24 with disability are an important customer group 19:58:26 for that 19:58:30 , and really worth collecting data in it 19:58:33 and investing and thinking about the 19:58:36 design of their products and services. It is 19:58:38 really to make that case. And I do not want 19:58:42 to steal too much than death from tomorrow's 19:58:45 sessions because it will look a bit more at 19:58:48 innovation but we do have an innovation fund 19:58:51 that we are specifically 19:58:53 looking at assistive technologies which is in 19:58:55 the way the moment. I think we have three of 19:58:59 the grantees for that innovation fund from 19:59:01 Asia, so I think that will be discussed a bit 19:59:05 more tomorrow. 19:59:06 Our investment there is both in helping to 19:59:09 really coach and support 19:59:13 those start-ups and innovation to think 19:59:15 about their product or service and how it can 19:59:18 really enable a 19:59:21 and include people 19:59:26 with disabilities be but also to showcase to 19:59:29 the mobile industry that this is something that 19:59:32 matters and help those start-ups and 19:59:34 innovations to connect with mobile operators 19:59:36 where possible for mainstream services that 19:59:38 they provide. 19:59:39 But yeah, I mean, really important for us 19:59:42 because 19:59:44 many of the barriers that persons with 19:59:46 disability face also apply more generally to 19:59:49 populations 19:59:51 in lower income countries and 19:59:54 persons with disabilities have layered 19:59:57 levels of barriers of challenges that 20:00:06 intersection that was talked about the 20:00:08 beginning. Some of the barriers 20:00:10 around affordability. If 20:00:14 that barrier can be addressed for everyone, 20:00:16 that will disproportionately 20:00:17 benefit people with disabilities bird. 20:00:32 That is of new approach we've taken if we can 20:00:35 approach some of these big challenges around 20:00:38 digital skills, around affordability, around 20:00:42 access features they will benefit 20:00:46 the great majority of the population 20:00:48 disproportionately 20:00:49 benefit 20:00:51 persons with disabilities as well. 20:00:53 GERALD GOGGIN: 20:00:56 thanks very much, Isabel. 20:01:08 Look I think we are out of time. I've been a 20:01:12 little bit crap at not getting everything in 20:01:15 the Chatfield. But others have been 20:01:17 contributing and clocking it and Katie 20:01:20 has mentioned interdependence as a key 20:01:22 concept. That's another good 20:01:23 place to end. So let me just close the 20:01:27 session of the first day. I just want to 20:01:30 thank the LIRNEasia team very much, there has 20:01:33 been a lot of work that's gone into this 20:01:36 behind-the-scenes and thanks to the speakers 20:01:38 today and thanks for the active listening and 20:01:41 participation. I think we have all 20:01:43 found it all very rich. I wanted to remind 20:01:46 everyone that the transcript of the live 20:01:49 captioning will be made available on the website 20:01:52 if you are interested in joining tomorrow's 20:01:54 session that is the zoom registration link 20:01:58 which has been made available in the chat. 20:02:01 Please pass on to those who think might be 20:02:04 interested and I look forward to seeing you 20:02:07 tomorrow. I think that is it. All 20:02:09 good. 20:02:12 Thanks so much again, everyone. It has been a 20:02:15 unique opportunity and look forward to seeing 20:02:18 tomorrow. Thanks so much. Cheers. 20:02:20 (CAPTIO 20:02:20 NS 20:02:21 OF 20:02:21 F)