I find myself a little defensive when I bring up the needs to access data quickly for policy-relevant research in gatherings dominated by fans of GDPR. Does not stop me, but I keep wondering what they think of me. But reading Siddhartha Mukherjee, a doctor deeply engaged in the fight against COVID-19 makes me feel much better.the System designers and lawyers have forgotten the original purpose of healthcare records: to help cure the patient. Finally, we need to acknowledge that our E.
Viktor Mayer-Schonberger and I have been debating privacy since the early 1990s. We both had chapters in Technology and Privacy: The New Landscape, which remains a seminal book on technology and privacy, published in 1997. Just last month, we continued our conversation at IGF in Bali. He was not so forthright in Bali, but now he is putting into words what we have been kicking around in our internal discussions. At the just-concluded IAPP Data Protection Congress in Brussels, the audience heard a bold proposal from closing keynoter Viktor Mayer-Schönberger: “The naked truth is that informational self-determination has turned into a formality devoid of meaning and import.
GPS tracking devices are appearing all over the place. This NYT article gives a very positive spin to the tagging of wild animals and to the making of the data widely available, seeing it as a way of building public support for conservation. Some scientists are beginning to provide the public with direct access to tracking data. For instance, the leaders of the Tagging of Pacific Predators project, a 10-year tracking study of 23 different marine species, created a Web site broadcasting the movements of their subjects in real time (or close to it). While the project lasted, anyone with an Internet connection could follow the wanderings of Monty, the mako shark, Genevieve, the leatherback turtle, or Jon Sealwart and Stelephant Colbert, both northern elephant seals.